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Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE)
15 Mead CloseMarlow
Buckinghamshire
SL7 1HR
Tel: 01628 476687
Web: www.pxe.org.uk
Best time to telephone: normal working hours, and evenings and weekends in case of emergency..
The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run entirely by unpaid volunteers.
The PXE support group aims to:
- Help, encourage and assist those with PXE and their family members.
- Heighten the awareness of PXE amongst the medical community, support services and the general public link members with each other for mutual support and exchange of ideas.
- Provide information on the various aspects of PXE.
- Provide copies of newsletter, "Pixie", containing medical articles and letters from members.
- Hold meetings to which all members, their families and friends are invited.
Contact the above address for further information on PXE, the support group, to make a donation or to become a member.
Checked: June 2006
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