Tel: Helpline 07765 947599 (4.00 - 6.00 pm weekdays)
Web: www.lichensclerosus.org

A sufferer of lichen sclerosus (LS) established this organisation (previously called the National Lichen Sclerosus Support Group) in 1997 with the following aims:

• To relieve the sense of isolation that people may experience as a result of diagnosis of LS.
• To offer support and current available information.
• To raise awareness of the disease, particularly amongst GPs.
• To produce information on specific topics (eg sexual difficulties) as well as general information and sharing experiences.

Membership of the group is free but requires donations to cover costs.