Related to this topic: Support | Patient+ | UK Guidelines | News | Weblinks | Poem/Story | Equipment | Books | Glossaries
Print options: 
(tip - pdf print is neatest)
Other options:
(what's this?)
Down's Syndrome Research Foundation
18 Daws Hill Lane
High Wycombe
Buckinghamshire
HP11 1PW
Tel: 01494 521826
Web: www.dsrf.co.uk
Best time to telephone: 10am - 3pm
The objectives of the Down's Syndrome Research Foundation are to find treatments and cures for the medical problems collectively called Down's syndrome. The Foundation's activities are as follows:
- Initiates and supports medical research projects.
- Disseminates information on the internet (all the foundation's information is available on the website).
- 1999 Health Care Guidelines for children and adults with Down's syndrome are on the website. These are prepared by the Down's Syndrome Medical Interest Group (a group of medical professionals in the USA).
- Information on alternative medicine / nutritional therapy is also available on the website.
- Distributes a free DVD for health professionals that discusses among other issues the topic of 'how to break the news'. The DVD explains what doctors can say to parents when they have to break the news that the baby has Down's syndrome. Parent perspectives are included in the film as well.
- Publishes 'Bright Beginnings', a free A4 36 page booklet for parents who have a baby with Down's syndrome. The booklet understands the needs of children with trisomy 21 and recognises the shock and distress felt by their parents.
- Provides other resources for medical professionals (DVDs on the latest in medical research), schools ('Everyone Counts' is a programme on inclusion), and books & DVDs on all aspects of Down's syndrome. Details on all resources are available on the website.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Patient Support related to this topic (^ top of page)
Action Duchenne Alzheimer's Research Trust Arthritis Research Campaign Asthma UK (Scotland) Aviation Health Limited BLISS - The Premature Baby Charity Bob Champion Cancer Trust Brain Tumour UK British Association of Dermatologists British Skin Foundation Cancer Research UK Core Crohn's in Childhood Research Association - CICRA Deafness Research UK Diabetes Research & Wellness Foundation Dominic Barker Trust Dose of Dignity Down Syndrome Education Trust Down's Heart Group Down's Syndrome Association Down's Syndrome Scotland Elimination of Leukaemia Fund Endometriosis UK Epilepsy Research UK Fight for Sight Foundation for Study of Infant Deaths Foundation for Women's Health Research and Development - FORWARD International Glaucoma Association Invest in ME Jennifer Trust for SMA (Spinal Muscular Atrophy) Juvenile Diabetes Research Foundation Kidney Research UK LUPUS UK Macular Disease Society Meningitis Research Foundation Meningitis Trust MERGE - Myalgic Encephalomyelitis Research Group Mick Knighton Mesothelioma Research Fund Mosaic Down Syndrome UK Multiple Sclerosis Society Multiple Sclerosis Society Scotland Muscular Dystrophy Campaign Myasthenia Gravis Association Neuroblastoma Society Pain Relief Foundation Patients' Voice for Medical Advance Primary Sclerosing Cholangitis Trust Prostate UK Psoriasis Association PSP Association PUMPA - Purine Metabolic Patients' Association RAFT - Restoration of Appearance & Function Trust Rett Syndrome Association of the UK Samantha Dickson Brain Tumour Trust (SDBTT) Scottish Cot Death Trust SDBTT Astro Fund Spinal Research Tenovus Cancer Information Centre UK Adhesions Society Vitiligo Society World Cancer Research FundMedical reference articles in PatientPlus related to this topic (^ top of page)
Amniocentesis Antenatal Screening for Down's Syndrome Down's Syndrome Mental Handicap Prenatal DiagnosisUK guidelines related to this topic (^ top of page)
Guidelines on Down's SyndromeRecent news items related to this topic (^ top of page)
Tales of the unexpected: Medicine's accidental discoveries Viagra 'aids muscular dystrophy' Powdered passion fruit may cure asthma, say scientists Cameron reveals plight of disabled son to explain backing for embryo research Embryo research debate set to run and run Monkey controls robotic arm with mind Immune block tackles Alzheimer's Behavioural problems: are drugs really the answer? Enzyme could lead to drugs to reverse the onset of Alzheimer's Red wine may 'curb effects of ageing' Heart health and red wine Stem cells 'halt nerve disease' Big hearts 'have genetic problem' Health risk of long-term mobile phone use to be studied by scientists Fresh hurdle for stem cell hunt Gene chemicals 'cancer warning' 'Hunger hormone' depression link Chickens 'unlock allergy secrets' Central NHS cancer research database launched Donor children 'emotionally well' Sly smokers spark more pub inspections Pregnant women are forced to go private for Down's syndrome test Scientists develop risk-free Down's testLinks to other selected websites related to this topic (^ top of page)
Down's Syndrome Medical Research ResearchPoems and stories related to this topic (^ top of page)
A Special Kind of LifeOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
Want to search some more? Use the Google Search box below to search our site.
Would you like to try our advanced on-line knowledge support system designed to provide professionals with relevant up to date information about recognition and management of disease or take the Mentor Challenge?
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.