Down's Syndrome Research Foundation

18 Daws Hill Lane
High Wycombe
Buckinghamshire
HP11 1PW

Tel: 01494 521826
Web: www.dsrf.co.uk
Best time to telephone: 10am - 3pm

The objectives of the Down's Syndrome Research Foundation are to find treatments and cures for the medical problems collectively called Down's syndrome. The Foundation's activities are as follows:

• Initiates and supports medical research projects.
• Disseminates information on the internet (all the foundation's information is available on the website).
• 1999 Health Care Guidelines for children and adults with Down's syndrome are on the website. These are prepared by the Down's Syndrome Medical Interest Group (a group of medical professionals in the USA).
• Information on alternative medicine / nutritional therapy is also available on the website.
• Distributes a free DVD for health professionals that discusses among other issues the topic of 'how to break the news'. The DVD explains what doctors can say to parents when they have to break the news that the baby has Down's syndrome. Parent perspectives are included in the film as well.
• Publishes 'Bright Beginnings', a free A4 36 page booklet for parents who have a baby with Down's syndrome. The booklet understands the needs of children with trisomy 21 and recognises the shock and distress felt by their parents.
• Provides other resources for medical professionals (DVDs on the latest in medical research), schools ('Everyone Counts' is a programme on inclusion), and books & DVDs on all aspects of Down's syndrome. Details on all resources are available on the website.