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Congenital Adrenal Hyperplasia Support Group
2 Windrush Close
Flitwick
Bedfordshire
MK45 1PX
Tel: 01525 717536
Web: www.cah.org.uk
Best time to telephone: any reasonable time.
The Congenital Adrenal Hyperplasia Support Group was formed in 1991 to assist families affected by congenital adrenal hyperplasia, also known as adrenogenital syndrome. The Group has the following aims:
- To give support to families and sufferers.
- To increase awareness of the condition to the public and to the medical profession.
- To raise funds to support research.
Together with CLIMB (Children Living with Inherited Metabolic Diseases), the group offers the following services:
- An information pack.
- Newsletters three times a year.
- Conferences at regular intervals.
- Members have access to support and advice via telephone, personal visits (where possible) or email.
- Questions can be answered by a board of specialist medical advisors.
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