Jean Harrison
10 Overhill Road
Weeping Cross
Stafford
ST17 0QA

Tel: 01785 661263
Web: www.proteus-uk.org

Proteus Family Network have been established as a support group since 1998.
The aims of the Network are as follows:

• To preserve and protect the health and promote the welfare of persons affected by Proteus Syndrome and associated conditions.
• To advance the education of the medical profession and the general public on the subject of Proteus Syndrome and associated conditions and its implication for the individual and their family.
• To support research into the management of Proteus Syndrome and associated conditions.

They provide:

• Support to families and individuals encountering Proteus for the first time.
• Provide information on specialist clothing and footwear.
• Support ongoing research into the causes of Proteus.
• Publish regular newsletters.
• Host family get-togethers.