Androgen Insensitivity Syndrome Support Group

Web: www.aissg.org

Androgen Insensitivity Syndrome (AIS) causes an interruption of the foetal development of the reproductive system resulting in abnormal development of reproductive organs and sometimes genitalia. There are two forms: complete (CAIS) and partial (PAIS).

AIS has the following synonyms: Androgen Resistance Syndrome, Testicular Feminisation Syndrome, Feminizing Testes Syndrome, Male Psuedo-hermaphroditism, Goldberg-Maxwell Syndrome (CAIS), Morris's Syndrome (CAIS), Lubs Syndrome (PAIS), Reifenstein Syndrome (PAIS), Gilbert-Dreyfus syndrome (PAIS), Rosewater Syndrome (PAIS). Other XY conditions: 5 alpha-reductase deficiency, 17 keto-steroid reductase deficiency, XY gonadal dysgenesis (Swyer Syndrome), Denys-Drash Syndrome, Smith-Lemli-Opitz Syndrome. XX conditions: Mayer Rokitansky Kuster Hauser (MRKH) Syndrome, Mullerian dysgenesis.

The AIS Support Group provides:

• Information/support to individuals/families with AIS and similar conditions; XY gonadal dysgenesis (Swyer’s syndrome), 5 alpha-reductase deficiency, leydig cell hypoplasia, MRKH syndrome etc.
• 22 issues of journal/newsletter (ALIAS – Looking At AIS) for group members and medical/psychological care-givers.
• Informal UK group meetings with guest clinicians.
• Free online newsgroup/meetings for a small subscription for patients/parents.
• Overseas groups.

See the website for more information about the AIS Support Group