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Hyperekplexia Contact Group

216 Westcott Crescent
Hanwell
London
W7 1NU

Tel: 020 8578 0456
Best time to telephone: after 6pm, Monday - Friday

Hyperekplexia is a rare hereditary neurological disorder. Individuals with this disorder have an excessive startle reaction to sudden noise, movement or touch. There are other associated symptoms. Hyperekplexia may also be known as: startle disease, stiff baby syndrome, exaggerated startle reaction, familial startle disease. The Hyperekplexia Contact Group is a small group of families with affected children. The Group has the following aims.

  • Provide a listening ear to other families.
  • Raise awareness of hyperekplexia.
  • Educate professionals.
  • Keep up to date with current information and research into hyperekplexia.

The group produces a leaflet describing its activities and the condition itself. It also has copies of some clinical information. Please send a stamped addressed envelope when requesting information.

Checked: 25 Feb 2008

Comprehensive patient resources are available at www.patient.co.uk

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PS - Health and Poverty

Perhaps the biggest cause of ill health in the world is poverty. Help to Make Poverty History. For example, why not lend some of your money to disadvantaged communities to enable them to trade their way out of poverty through schemes such as Shared Interest.

See also MAKEPOVERTYHISTORY North East for details and links to campaigns against poverty.

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