TAR Syndrome Support Group

Little Wings
Whatfield Road
Elmsett
Ipswich
IP7 6LS

Tel: 01473 657535
Web: www.ivh.se/TAR
Best time to telephone: 8pm - 9pm, Monday - Friday

TAR syndrome (Thrombocytopenia with Absent Radii) is a rare disorder characterised by a reduction of the number of platelets in the blood and bilateral absence of the radii (forearm bones). The TAR Syndrome Support Group is a small, parent-led group with limited funds. The aims of the group are as follows.

• To offer support to families affected by TAR syndrome.
• To raise awareness of TAR syndrome with professionals and other interested individuals.
• To link families in similar situations and areas.
• To give new families hope for their children's future through the shared experiences of older children in the group.
• To share information on equipment, benefits, relevant support organisations, etc.
• To support families through increasing public awareness of TAR syndrome by raising funds, organising events, and publishing literature.
• The group's lively website gives information on the syndrome, news of the group and its activities, details of support, and links to other organisations.

The Group publishes an annual newsletter and leaflets including: What is a blood platelet?, Heart Defects and TAR Syndrome, which are also included on the website. They also run a family day every two years.