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Rett Syndrome Association of the UK
113 Friern Barnet Road
London
N11 3EU
Tel: 0870 770 3266 (local callers: 020 8361 5161)
Fax: 0870 770 3265 (local callers: 020 8368 6123)
Web: www.rettsyndrome.org.uk
Best time to telephone: 9am - 5pm, Monday - Friday (24 hour answerphone)
Rett syndrome is a complex neurological disorder that affects mainly girls. Rett Syndrome Association of the UK is a national organisation giving help, advice and support to families and professionals.
Their services include a quarterly magazine, a family weekend, self-help support groups across the UK, and parent to parent support through a regional contact network. Their support service manager provides proactive support, advice and information to families, carers and professionals. They fund research and work in partnership internationally. They rely on donations and grants for their income.
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.