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Ichthyosis Support Group
PO Box 7913Reading
RG6 4ZQ
Tel: 0845 602 9202.
Web: www.ichthyosis.org.uk
The Ichthyosis Support Group (ISG) was founded in March 1997 by a group of determined individuals who either suffer from ichthyosis themselves, or who care for children who suffer with it.
They aim:- To preserve and protect the health of and to relieve persons affected by ichthyosis and any associated condition.
- To advance the education of the medical profession and the general public on the subject of ichthyosis and its implications for the family.
- To promote research into the management of ichthyosis and to publish the useful results thereof, and to support organisations promoting research into ichthyosis.
The ISG provides:
- A quarterly newsletter.
- An information pack.
- National Events.
- National and regional contacts.
- A Medical Advisory Board.
Checked: March 2006
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