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Gorlin Syndrome Group
Tel: 01772 517624
Web: www.gorlingroup.org
The Gorlin Syndrome Group was formed in the UK in 1992 by Mr Jim Costello (now deceased), with help from the clinical genetics departments at St. Mary's Hospital, Manchester and Birmingham Women's Hospital, Professor G R Evans and Professor Farndon respectively and their staff.
Contact is maintained with families world-wide. In the UK they are in contact with 300 families affected by the condition. Their aims include:
- The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related condition and their families and carers.
- The advancement of the education of the medical profession and the general public into Gorlin syndrome and its implications for the family.
- The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate the useful results thereof.
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