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HSP/FSP Support Group
Tel (Helpline): 01702 218184
Tel (Admin): 01305 772286
Web: www.fspgroup.org
The HSP/FSP Support Group helps people diagnosed with Hereditary Spastic Paraplegia [also known as Familial Spastic Paraparesis (FSP) or Idiopathic Spastic Paraplegia]. It is a UK based 'self-help' group and was started in 1989 by Stephanie Wyatt to support her affected husband and son. They now have over 300 members in the UK.
The Group aims to encourage and support members, and wherever possible to support research into the condition. They regularly publish information about HSP and the Group to members. Activities include the following:
- An Annual General Meeting featuring lectures by HSP/FSP specialists.
- Regional meetings are held twice a year in some regions.
- A newsletter published to members quarterly.
- A telephone and e-mail help-line offering advice and support to members.
- A library of information articles on HSP.
- An Information Booklet is published to members containing a synopsis of helpful items.
- Grants to members to help with the purchase of mobility aids.
- An e-mail list server system to share information and experiences.
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