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Dysautonomia Society of Great Britain

DSGB
PO Box 17679
London
NW4 1WS

Tel: 020 8357 0038
Fax: 020 8958 8760
Best time to telephone: 9am - 6pm, daily

Familial Dysautonomia (FD) is a genetic disease that affects male and female Jewish babies, primarily causing dysfunction of the autonomic and sensory nervous systems. It is estimated that one in thirty individuals of Eastern European Jewish ancestry is a carrier of the gene for FD.

The Dysautonomia Society of Great Britain is a registered charity. The society is affiliated to the Dysautonomia Foundation whose headquarters are in New York. The Society provides information to members, parents, professionals and anyone who requests medical, educational, or promotional material concerning FD. The organisation's members have monthly meetings and run a support network. The charity now raise money to bring over to the UK Israeli and American specialists to hold clinics in London, to see any FD child/adult who does not travel well.

The charity is also there to financially support the needs of the FD patients.

The helpline (details above) is available to all for answering queries on FD.

Checked: 7 Mar 2008

Comprehensive patient resources are available at www.patient.co.uk









Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

Advertise on this site


PS - Health and Poverty

Perhaps the biggest cause of ill health in the world is poverty. Help to Make Poverty History. For example, why not lend some of your money to disadvantaged communities to enable them to trade their way out of poverty through schemes such as Shared Interest.

See also MAKEPOVERTYHISTORY North East for details and links to campaigns against poverty.

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