Related to this topic: Support | Equipment | Books | Glossaries
Print options: 
(tip - pdf print is neatest)
Other options:
(what's this?)
Dysautonomia Society of Great Britain
DSGB
PO Box 17679
London
NW4 1WS
Tel: 020 8357 0038
Fax: 020 8958 8760
Best time to telephone: 9am - 6pm, daily
Familial Dysautonomia (FD) is a genetic disease that affects male and female Jewish babies, primarily causing dysfunction of the autonomic and sensory nervous systems. It is estimated that one in thirty individuals of Eastern European Jewish ancestry is a carrier of the gene for FD.
The Dysautonomia Society of Great Britain is a registered charity. The society is affiliated to the Dysautonomia Foundation whose headquarters are in New York. The Society provides information to members, parents, professionals and anyone who requests medical, educational, or promotional material concerning FD. The organisation's members have monthly meetings and run a support network. The charity now raise money to bring over to the UK Israeli and American specialists to hold clinics in London, to see any FD child/adult who does not travel well.
The charity is also there to financially support the needs of the FD patients.
The helpline (details above) is available to all for answering queries on FD.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Patient Support related to this topic (^ top of page)
JAT - Jewish AIDS Trust Jewish Association for the Mentally Ill Jewish Bereavement Counselling Service Jewish Care Jewish Deaf Association Jewish Marriage Council Jewish Women's Aid Norwood: Children and Families FirstOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
Want to search some more? Use the Google Search box below to search our site.
Would you like to try our advanced on-line knowledge support system designed to provide professionals with relevant up to date information about recognition and management of disease or take the Mentor Challenge?
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.