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Dancing Eye Syndrome Support Trust
78 Quantock Road
Worthing
West Sussex
BN13 2HQ
Tel: 01903 532383
Fax: 01903 532383
Web: www.dancingeyes.org.uk
Best time to telephone: evenings, after 6.30pm
The Dancing Eye (Opsoclonus Myoclonus) Syndrome Support Trust aims to give information and telephone support to families with children with dancing eye syndrome, also known as Kinsbourne syndrome. Other activities include the following:
- Arranging an annual meeting which includes talks by medical experts in this field.
- Arranging a weekend get-together for families in the Trust.
- Producing a newsletter twice a year.
The following publications are available from the Trust: Dancing Eye Syndrome; Neuroblastoma and Dancing Eye Syndrome.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
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