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Adrenoleukodystrophy Family Support Trust
4 Morley House320 Regent Street
London
W1B 3BF
Tel: 020 7631 3336
Fax: 020 7631 3336
Web: www.aldfst.org.uk
Best time to telephone: normal office hours.
Aderenoleukodrystrophy (ALD) is a genetic disorder which affects the adrenal gland and white matter of the nervous system. It affects males only and develops in boys between the ages of 4 and 10. The Adrenoleukodystrophy Family Support Trust was set up by parents of a boy with ALD. It works to raise funds for ALD research to find a cure for this life threatening disease. In addition it offers help to ALD sufferers and their families including offering professional babysitters and carers to give the family relief. The ALD Family Support Trust provides information packs and equipment and caring support to sufferers and their families. The Trust's aims and activities include the following.
- To further medical research into ALD.
- To make grants and allowances for the purposes of medical treatment and care of children suffering from ALD.
- To educate the public about ALD, and to put parents of such children into contact with each other for their mutual support and benefit.
- Provision of telephone support.
- Supply of information packs.
- Organising a conference and family weekend.
Checked: September 2006
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