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Headlines - The Craniofacial Support Group
128 Beesmoor RoadFrampton Cotterell
Bristol
BS36 2JP
Tel: 01454 850557
Web: www.headlines.org.uk
Best time to telephone: Anytime
The Craniofacial support group is run by parents and affected individuals to provide advice, information and help to those dealing with craniosynostosis, craniostenosis or any of the conditions or syndromes associated with craniosynostosis such as Crouzon's, Apert's, Saethre-Chotzen, Pfeiffer's, Muenke Syndrome, Cloverleaf skull. The CFSG can offer the following.
- Putting you in touch with other families, where possible with a child with the same condition and of a similar age.
- An opportunity to have your concerns answered.
- The latest information on surgical techniques, genetic research, and all issues affecting your child's future - from benefits to education.
- A way for affected people to contact others of their own age.
- A forum for opinions on all aspects of craniofacial conditions.
Visit their website for further details.
Checked: May 2006
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.