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CJD Support Network
PO Box 346
Market Drayton
Salop
TF9 4WN
Tel (helpline): 01630 673973
Tel: 01630 673993
Web: www.cjdsupport.net
The CJD Support Network was established in 1995 by relatives of people who have died with CJD. The Network's aims are as follows:
- To offer support to individuals and families concerned with all forms of CJD.
- To offer support to people who are told that they are at a heightened risk of CJD through blood and secondary transmission.
- To provide emotional support for carers and to link families with similar experiences of all forms of CJD.
- To offer financial support for families in need.
- To provide accurate, unbiased and up-to-date information and advice about all forms of CJD.
- To provide a national helpline on all forms of CJD.
- To promote good quality care for people with all forms of CJD.
- To promote research into all forms of CJD and the dissemination of research findings.
The network produces the following publications as well as regular newsletters. Audio information is also available.
- Creutzfeld-Jakob disease (booklet)
- Familial prion disease - an introduction and explanation (booklet)
- Familial CJD (information sheet)
- Sporadic CJD (information sheet)
- New variant CJD (information sheet)
- Iatrogenic CJD (information sheet)
- Nurses Guidelines for CJD
- Social Work Guidelines for CJD
- Autopsy Inpatients with Suspected CJD
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.