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Treacher Collins Family Support Group

114 Vincent Road
Norwich
NR1 4HH

Tel: 01603 433736
Web: www.treachercollins.net

The Treacher Collins Family Support Group was set up in 1987 by a group of parents to meet the needs of families and individuals. The Support Group now operates through their website.

Aims of the Group:

  • To offer support and friendship to Treacher Collins families and individuals.
  • To seek to gain greater knowledge and understanding of Treacher Collins syndrome.
  • To offer advice to families and individuals on various aspects of the syndrome.
  • To help develop a clear policy on areas such as facial surgery, hearing aids and genetic counselling for Treacher Collins families and individuals.
Checked: 18 Feb 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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