Nystagmus Network

13 Tinsley Close
Claypole
Newark
Nottinghamshire
NG23 5BS

Tel: 0845 634 2630
Web: www.nystagmusnet.org

Nystagmus is a form of visual impairment. It is an involuntary eye movement which cannot be corrected by wearing spectacles or contact lenses. Accompanying eye conditions such as short or long sightedness or astigmatism may be corrected, enabling the sufferer to see more clearly.

The Network is a self-help group run by people who are affected by nystagmus. The Network was founded in 1984 by Vivien Jones whose son, Sam, has nystagmus. Founder members had all experienced widespread ignorance about nystagmus and decided to set up a self-help group to provide support and information to all those affected. The Network aims to promote awareness and understanding, and to encourage medical research into the condition. The Network is involved in the following activities:

• Publications include a 40 page information pack for parents and a 39 page pack for teachers. Also, a number of factsheets including: Nystagmus and Driving, Nystagmus and Computers, Early Onset Nystagmus, and Wobbly Eyes.
• Focus is the quarterly newsletter keeping members updated regarding research, equipment etc.
• An information card for school teachers has been produced which suggests how they may assist pupils with nystagmus; also a pocket size ID card for pupils.
• Nystagmus has been promoted through the media.
• Annual open days are held, with guest speakers (audio cassettes available) and at regional centres.
• The Network can provide speakers for seminars, teacher's workshops and other meetings.