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Williams Syndrome Foundation

161 High Street
Tonbridge
Kent
TN9 1BX

Web: www.williams-syndrome.org.uk

The Foundation finds many ways to help Williams' syndrome children and their families. There are regional contacts around the country - all parents of a Williams' syndrome child - who keep in touch with local families, visit new contacts, arrange meetings, and organise fund-raising events. The Foundation organises national meetings, as well as local gatherings for families.

The Foundation acts as an information and advisory service and keeps parents in touch, with half yearly newsletters and magazine. It also keeps a register of all known Williams' syndrome cases and provides access for professionals to assist research.

Checked: 17 Aug 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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