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Williams Syndrome Foundation
161 High Street
Tonbridge
Kent
TN9 1BX
Tel: 01732 365152
Fax: 01732 360178
Web: www.williams-syndrome.org.uk
Best time to telephone: normal office hours.
The Foundation finds many ways to help Williams syndrome children and their families. There are regional contacts around the country - all parents of a Williams syndrome child - who keep in touch with local families, visit new contacts, arrange meetings, and organise fund-raising events. The Foundation organises national meetings, as well as local gatherings for families.
The Foundation acts as an information and advisory service and keeps parents in touch, with half yearly newsletters and magazine. It also keeps a register of all known Williams syndrome cases and provides access for professionals to assist research. The Williams Syndrome Foundation incorporates Infantile Hypercalcaemia.
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