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Tuberous Sclerosis Association
PO Box 12979
Barnt Green
Birmingham
B45 5AN
Tel: 0121 445 6970
Web: www.tuberous-sclerosis.org
The Tuberous Sclerosis Association has the following aims:
- To support those with tuberous sclerosis and their carers.
- To provide education, publicity and information to promote an understanding and an awareness of the problems caused by the condition.
- To support fund-raising to support research into the causes and management of tuberous sclerosis.
The Association offers the following services to individuals with tuberous sclerosis and their carers.
- Wide range of literature on tuberous sclerosis and associated topics, with special leaflets for teachers, nurses, doctors and those only mildly affected by tuberous sclerosis.
- Telephone advice and support.
- Tuberous sclerosis specialist advisers for support, advice, and advocacy.
- Specialist tuberous sclerosis clinics in Leeds, Bath, Cambridge, London, and Belfast.
- Benevolent fund.
- Annual family weekend.
- Group holidays or weekend breaks.
- Meetings with expert talks.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest.
Find out more about updating.
Related pages in Patient UK
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Tuberous SclerosisUK guidelines related to this topic (^ top of page)
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Tuberous SclerosisPatient UK Newspaper (^ top of page)
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