Tourettes Action

Southbank House
Black Prince Road
London
SE1 7SJ

Helpline: 0845 458 1252
Web: www.tourettes-action.org.uk
Best time to phone: 9am - 5pm, Monday - Friday. Answerphone at other times.

Tourette syndrome is a medical condition with a genetic component but is, as yet, of unknown cause. It is characterised by a combination of chronic musculartics (twitch like movements) and vocal tics (involuntary noises) and is often socially stigmatising.

Tourettes Action (formerly The Tourette Syndrome (UK) Association) is a registered charity, established during 1980, to assist sufferers, their families, and any other persons connected with the disorder. Its aims are the following:

• Providing support.
• Educating, informing and campaigning.
• Promoting medical research on behalf of those affected by Tourette syndrome.

Members include individuals with the disorder, their relatives and other interested people. Tourettes Action develops and disseminates educational material to individuals, professionals, and to agencies in the fields of healthcare and government. It co-ordinates family networking and other services to help people and their families to cope with the problems that occur with TS. It also assists with the funding of research. Services of Tourettes Action include the following:

• Provision of a national helpline (number above).
• Twice yearly conferences with guest speakers and question and answer sessions.
• Family networking - member families can be put in touch with someone in their area.
• Newsletters and news bulletins and recommended reading lists.
• Video hire.
• Identity cards for a small cost.
• List of UK consultants specialising in the diagnosis and treatment of Tourette syndrome.
• Advice on finding specialist help in matters such as education.

Contact the above for a free information pack.