Related to this topic: Patient+ | Equipment | Books | Glossaries
Print options: 
(tip - pdf print is neatest)
Other options:
(what's this?)
Telangiectasia Self Help Group
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
Tel: 01494 528047
Web: www.telangiectasia.co.uk
Best time to telephone: 9am - 5pm, Monday - Friday
The Telangiectasia Self-Help Group provides information and support to people with hereditary haemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, their families and carers. The group links families in a similar situation so that experiences can be shared. Members (currently totalling around 600) receive an occasional newsletter which includes information on developments in the treatment of the disease. An information pack is available on receipt of an A4 SAE (with three second class stamps).
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Medical reference articles in PatientPlus related to this topic (^ top of page)
Osler-Weber-Rendu Syndrome Upper Gastrointestinal BleedingOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
*** NEW *** Patient UK Newspaper
View current health newsMedical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
Would you like to try our advanced on-line knowledge support system designed to provide professionals with relevant up to date information about recognition and management of disease or take the Mentor Challenge?
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.