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PWSA (UK)
125a London Road
Derby
DE1 2QQ
Tel: 01332 365676
Fax: 01332 360401
Web: www.pwsa.co.uk
Best time to telephone: 9.30am - 3.30pm Monday - Friday. Answerphone at all other times.
The Prader-Willi Syndrome Association (UK) was founded in 1981 and is a registered charity. It is run primarily by parents of people with Prader-Willi syndrome with advice from professionals working in the fields of health, social services and education.
The Association's aim is to provide support and information for parents and carers, to promote knowledge and awareness of the syndrome amongst professionals as well as the public and to improve the quality of care given to people with Prader-Willi syndrome. Information leaflets, handbooks, medical texts and papers are all made readily available and the Association actively encourages medical research.
Local support groups and networks have been formed in some areas. Training for professionals in health, education and social services is also available.
The Association can also provide an advocacy and support service to people with the syndrome, as well as advice and information on benefit claiming.
Membership is free and open to anyone. Donations are welcome.
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