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Ataxia Telangiectasia Society

IACR - Rothamsted
Harpenden
Hertfordshire
AL5 2JQ

Tel: 01582 760733
Web: www.atsociety.org.uk

The Ataxia-Telangiectasia Society is a support group with the objective to alleviate the suffering that A-T causes. The Society's activities include:

  • Funding research.
  • Offering help and support to families suffering from A-T.
  • National meetings for families.
  • Raising awareness of A-T.
  • Production of a regular newsletter.
  • Welfare grants, as appropriate.
  • Distribution of a range of leaflets including: A-T: An Overview available in English, Farsi, Spanish, French, Turkish and Bengali, A-T: Parents' Guide, A-T: Immune Deficiency, A-T: Therapies, A-T: Teachers' Guide, A-T: What is A-T?, A-T: Genetics and Pre-natal Testing..
  • Two A-T clinics: one for 16 and over, the other for 15 and below.
  • Family support worker.
  • Counsellor.
  • Fundraising to operate the above activities.
  • Handbook for Families and Caregivers.
  • Campaigning to improve services for people with A-T.
Checked: 31 Oct 2011
For the planned review period see the Data Creation and Quality Control Process.

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