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Home > Support Directory > Support Groups > AGSD-UK - Association for Glycogen Storage Disease (UK)

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AGSD-UK

Old Hambledon Racecourse
Sheardley Lane
Droxford
SO32 3QY

Tel: 0300 123 2790
Web: www.agsd.org.uk

The Association is a contact and support group for all persons affected by glycogen storage disease (GSD) and their families. Secondary purposes of the Association are:

  • To protect and promote the best interests of all persons affected with GSD.
  • To act as a vehicle of communication on GSD related matters.
  • To encourage the improvement of facilities for the treatment, study, education, shelter, recuperation and other general benefits to GSD affected persons.
  • To act as a focus for educational, scientific and charitable activities related to the disease.
  • To contact other similar groups worldwide.

The Association publishes a newsletter and produces a leaflet on GSD and the various types, and has a range of workshop reports which can be found on their website.

Checked: 16 Feb 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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