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Association for Glycogen Storage Disease (UK)
9 Lindop Road
Hale
Altrincham
Cheshire
WA15 9DZ
Tel: 0161 980 7303
Web: www.agsd.org.uk
Best time to telephone: 9am - 9pm
The primary purpose of the Association is to act as a family contact and support group for all persons affected by some form of glycogen storage disease (GSD) and their families. Secondary purposes of the Association are:
- To protect and promote the best interests of all persons affected with GSD.
- To act as a vehicle of communication on GSD related matters.
- To encourage the improvement of facilities for the treatment, study, education, shelter, recuperation and other general benefits to GSD affected persons.
- To act as a focus for educational, scientific and charitable activities related to the disease.
- To contact other similar groups worldwide.
The Association produces a general leaflet on GSD and the various types, and has a range of other publications.
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Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Glycogen Storage DisordersPatient Support related to this topic (^ top of page)
Pompe's Group (Association for Glycogen Storage)Medical reference articles in PatientPlus related to this topic (^ top of page)
Glycogen Storage Disorders Mcardle's Glycogen Storage Disease Phosphofructokinase Deficiency Pompe's Glycogen Storage Disease The Heart in Systemic Disease Von Gierke's Syndrome (Type I Glycogen Storage Disease)Links to other selected websites related to this topic (^ top of page)
Glycogen Storage DiseasesOther - Useful resources (^ top of page)
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