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Dystonia
UK sources of information and / or support
Dystonia Society
Formed in 1983 to help people suffering from this neurological movement disorder. The Society works in three main areas: to increase awareness of the disorder, to offer welfare support, and encourage and fund research. Offers information on all the different forms of the condition including: spasmodic torticollis, blepharospasm, spasmodic dysphonia, writer's cramp, generalised dystonia.
Selective peripheral denervation of cervical dystonia
A patient guide to complement the NICE national guideline for health professionals called Selective peripheral denervation of cervical dystonia.
Deep brain stimulation for tremor and dystonia (excluding Parkinson's disease)
A patient guide to complement the NICE national guideline for health professionals called Deep brain stimulation for tremor and dystonia (excluding Parkinson's disease).
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Patient Support related to this topic (^ top of page)
ADDER - Action for Dystonia, Diagnosis, Education & Research Dystonia SocietyMedical reference articles in PatientPlus related to this topic (^ top of page)
Abnormal Involuntary MovementsUK guidelines related to this topic (^ top of page)
Guidelines on DystoniaOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.