Down's Syndrome

UK sources of information and / or support

 Downs Syndrome Association

Help for people with downs syndrome and their families and carers.

 Down's Syndrome Scotland

Works to improve the quality of life for everyone with Down's syndrome in Scotland.

 Down's Syndrome Research Foundation

Information for parents and medical professionals on Down's syndrome medical research and targeted nutritional intervention with links to key websites in the USA & Canada.

 Down's Heart Group

A UK charity providing support and information to families who have a member with Down's Syndrome and associated congenital heart problems. They also have some overseas members.

 UK Down's Syndrome Medical Interest Group (DSMIG),

This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. It has been produced by the UK Down's Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down's syndrome in the UK and Republic of Ireland. The website also inclues links to many resources ofor parents.

 Mosaic Down Syndrome UK

The website (and associated e-group) is designed as a support tool for parents of children with Mosaic Down Syndrome in the UK (although International members are warmly welcomed).

 Independent Panel for Special Education Advice (IPSEA)

IPSEA offers free and independent advice on Local Education Authorities' legal duties to assess and provide for children with special educational needs. These include children with physical disabilities, sensory impairment, emotional and behavioural difficulties, general and specific learning difficulties (including those arising from specific conditions such as Down's Syndrome, autism and dyslexia).

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.