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Deafness

UK sources of information and / or support

Main umbrella groups include:

Patient apple icon (PatientApple.gif) British Deaf Association

A resource for Deaf people that reflects every aspect of Deaf culture and provide a global space for Deaf people to share ideas and experiences.

Patient apple icon (PatientApple.gif) National Association of Deafened People

A major organisation in the United Kingdom that caters for people who, through accident or illness, have lost most or all of their useful hearing.

Patient apple icon (PatientApple.gif) National Deaf Children's Society

The UKs only charity solely dedicated to supporting all deaf children and their families. Impartial sources of information, advice and advocacy with a national network of offices, local groups and representatives.

Patient apple icon (PatientApple.gif) RNID - Royal National Institute For Deaf People

Support for Deaf people. Contains factsheets on a range of hearing related topics.

Patient apple icon (PatientApple.gif) RNID - Online Hearing Check

An on-line hearing check provided by The Royal National Institute for the Deaf.

Patient apple icon (PatientApple.gif) Scottish Council on Deafness

The national co-ordinating body for voluntary and statutory organisations which cater for a wide range of needs of Deaf Sign Language users, deafened, deafblind and hard of hearing people, their families, carers and professionals working with them.

Other sites and organisations

Patient apple icon (PatientApple.gif) Cambridge University Hospital

Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including leaflets on audiology, hearing aid accessories and problems.

Patient apple icon (PatientApple.gif) Cochlear Implant Users Association (the National)

The NCIUA is the Association that represents all Cochlear Implant users in the United Kingdom. It is open to all implant users, their family and friends.

Patient apple icon (PatientApple.gif) Deaf247

Deaf resource point on the internet for everything you ever need!

Patient apple icon (PatientApple.gif) DeafClub UK

Very comprehensive internet search site on deafness including BSL, chatrooms, equipment, publications and jobs.

Patient apple icon (PatientApple.gif) Deafax

Based at the University of Reading, Deafax is involved in helping deaf and hearing people develop their communication and literacy skills using technology and other methods. <

Patient apple icon (PatientApple.gif) Deafblind UK's Scottish Website

Learn about Deafblind UK's work in Scotland, Guide/communicator service, Usher Syndrome Project in Scotland and Deafblind Manual.

Patient apple icon (PatientApple.gif) Deaf Essential Access Forum

Deaf Essential Access Forum mission's is to address a wide range of new and far reaching issues affecting local services users who are deaf and hard of hearing.

Patient apple icon (PatientApple.gif) Deaf Education Through Listening and Talking (DELTA)

Helps families which want their severely or profoundly deaf children to learn to listen and talk. Teachers and other professionals can also find useful information on the site.

Patient apple icon (PatientApple.gif) DeafPlus

Aims to develop innovative work with deaf and hearing people which enables them to improve their quality of life through contact, information and training.

Patient apple icon (PatientApple.gif) Deafsign.com

Major resource on sign language

Patient apple icon (PatientApple.gif) Deafness Research UK

A major UK charity dedicated to helping hearing impaired people through medical research and education. Their website also has information leaflets on a range of topics including:

  • Hearing aids
  • Tinnitus
  • Glue ear
  • Hyperacusis
  • Noise and hearing impairment
  • Hearing tests for babies
  • Cochlear implants
  • Deafness and ageing
  • Cholesteatoma
  • Otosclerosis
  • Meningitis and deafness
  • M‚niŠre's Disease
  • Genetics and deafness
  • Middle ear conditions
  • Hair cell research
  • Childhood deafness

Patient apple icon (PatientApple.gif) ENT UK

The British Assocation of Head and Neck Surgeons provides patient information on hearing and deafness.

Patient apple icon (PatientApple.gif) Elizabeth Foundation

A voluntary organisation for deaf babies, pre school children from 0-5 years and their parents. Aims to promotes and facilitate the early detection of deafness and to follow the diagnosis with the best intervention, support, teaching and guidance for both parent and child.

Patient apple icon (PatientApple.gif) HEAR - Help Ear and Allied Research

HEAR is working with Manchester Royal Infirmary in the treatment of severe to profound deafness.The charity is also working to develop CI technology which is designed for the auditory rehabilitation of a specific small group of totally deaf individuals.HEAR is also involved with new programmes looking at the effectiveness of semi-implantable and totally implantable hearing aids.

Patient apple icon (PatientApple.gif) Hearing Dogs For Deaf People

Trains carefully selected dogs to alert severely, profoundly or totally deaf people to everyday sounds which hearing people may take for granted.

Patient apple icon (PatientApple.gif) I CAN

National educational charity for children with speech and language difficulties. I CAN's vision is to help create a society where the special needs of these children are recognised, understood and met, allowing them to have the same opportunities in life as other children.

Patient apple icon (PatientApple.gif) Link Centre

The LINK Centre is for deafened people - people who have grown up with normal or near-normal hearing, then for one reason or another lost all or most of it during adult life.

Patient apple icon (PatientApple.gif) Sense, The National Deafblind and Rubella Association

Sense, the world's largest organisation working with and campaigning for deafblind people, their families and professionals who work with them.

Patient apple icon (PatientApple.gif) Sense Scotland

Sense Scotland is part of the UK National Deafblind and Rubella Association and assists people who are deafblind, or who have sensory impairment and other difficulties who need special help with communication, information, learning and mobility.

Patient apple icon (PatientApple.gif) The Genetics of Sensorineural Hearing Loss (SNHL)

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

Patient apple icon (PatientApple.gif) Sequal Trust

Fundraises on behalf of its members to provide a communication aid, which can be in the form of a specialised computer system, voice synthesiser to relay pre-recorded messages, and many other items of communication equipment.

Patient apple icon (PatientApple.gif) Signature

Signature promotes excellence in communication with deaf and deafblind people.

Patient apple icon (PatientApple.gif) Sign - The National Society for Mental Health and Deafness

The country's principal provider of services for deaf people with mental health problems.

Patient apple icon (PatientApple.gif) Speech Language and Hearing Centre

For babies and children aged under 5 who have hearing impairment or delay in speech, language and communication.

Patient apple icon (PatientApple.gif) Paget Gorman Society

A grammatical sign system which is used by many speech and language-impaired children, their parents, teachers, speech therapists and care staff.

Patient apple icon (PatientApple.gif) British Deaf Sports Council

The British Deaf Sports Council provide support, coaching and the opportunity for competition for deaf sports people in Britain.

Patient apple icon (PatientApple.gif) Deaf Forum

The Deaf Forum provides an opportunity to share news, information and encouragement for both the deaf and their carers.

Patient apple icon (PatientApple.gif) Deaf Studies Trust

The Deaf Studies Trust aims to improve communication and understanding in an attempt to enhance and improve the quality of deaf people's lives and their contribution to society.

Patient apple icon (PatientApple.gif) UK Deaf Sports

UK Deaf Sport aims to enable Deaf people to benefit from, excel at and fulfil their potential through sport of their own choosing. The website holds information on past and future events as well as support and advice.

Patient apple icon (PatientApple.gif) MIND

MIND, one of Britain's leading mental health charities provides a series of leaflets on the relationship between mental health and deafness.

See also the Patient UK pages on Hearing Aids and Cochlear Implants and the self help and support group directory for deafness.


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.


Checked: 23 Jan 2009

Comprehensive patient resources are available at www.patient.co.uk

The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest.

Find out more about updating.

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Patient UK Current Health News

Related pages in Patient UK

 Ear and Hearing - Picture Summary
 Ménière's Disease
 Otosclerosis
 Presbyacusis (Hearing Loss of Older People)

Support Group Advanced Hearing Services
Support Group British Association of Teachers of the Deaf
Support Group British Deaf Association
Support Group British Society of Hearing Aid Audiologists
Support Group Catholic Deaf Association
Support Group CHANGE
Support Group Cued Speech Association UK
Support Group Deaf Education through Listening and Talking
Support Group Deaf Studies Trust
Support Group Deafax (Communication for Deaf People)
Support Group Deafblind UK
Support Group Deafness Research UK
Support Group DeafPLUS
Support Group Deafsign.com
Support Group DisabledGo
Support Group Hearing Aid Council
Support Group Hearing Concern LINK
Support Group Hearing Dogs for Deaf People
Support Group Jewish Deaf Association
Support Group Lipservice (videos for hard of hearing)
Support Group Low Frequency Noise Sufferers Helpline
Support Group Music and the Deaf
Support Group National Association of Deafened People
Support Group National Cochlear Implant Users Association
Support Group National Deaf Children's Society
Support Group RNID - Royal National Institute for Deaf People
Support Group RNID Online Shop
Support Group RNID Typetalk
Support Group Royal Association for Deaf People
Support Group Royal School for Deaf Children
Support Group Scottish Council on Deafness
Support Group Sense - for deafblind people
Support Group Sense - Usher Section
Support Group Signature
Support Group SignHealth - The National Society for Mental Health and Deafness
Support Group SignHealth Counselling
Support Group SSC - Scottish Sensory Centre
Support Group TAG (Communications for Deaf People)
Support Group The Elizabeth Foundation
Support Group UK Deaf Sport
Support Group Wales Council for Deaf People

 Childhood Deafness
 Chronic Suppurative Otitis Media (CSOM)
 Deafness
 Deafness in Adults
 Hearing Tests

 Guidelines on Deafness

 Blindness
 Cochlear Implant
 Glue Ear
 Hearing Aids

Recent related news items

 Deaf fiancée says no to ear implants
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 Stem cells for deafness
 Stem cell 'deafness cure' closer

All news by related topic

 Deafness news

Medical equipment

 Hearing Accessories

Visit the Patient UK Medical Equipment shop

Books

 Caring for someone with a hearing problem
 Deafness & Tinnitus : British Medical Association's Family Doctor Series

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