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Cystic Fibrosis
UK sources of information and / or support
Patient UK
Has an information leaflet on Cystic Fibrosis
Cystic Fibrosis Trust (The)
The official Cystic Fibrosis Trust's Education and Information Site.
INTOCF.COM
For CF patients, their families and friends. Contains resource links, games, news, articles, and tips, as well as productinformation about Chiron Corporation's TOBI (an inhalable antibioticindicated for the treatment of CF patients with Pseudomonas aeruginosa),proper maintenance of the nebuliser used in administering TOBI, etc.
Medicine Guide for Cystic Fibrosis
Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat cystic fibrosis.
Cystic Fibrosis Medicine
A non profit web site with the aim of providing free information to professionals involved with the treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family. The site has been created and is maintained by a multidisciplinary clinical team who are actively involved in the treatment and day-to-day care of people with cystic fibrosis.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
Comprises an international network of health care professionals, researchers andconsumers preparing, maintaining, and disseminating systematic reviewsof randomised control trials in the treatment of cystic fibrosis andother genetic disorders.
Cystic Fibrosis
Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including one in this area.
Breathing Games for Young Children with Cystic Fibrosis
Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including one in this area.
Cystic Fibrosis
Youthhealthtalk is a website about young people’s real life experiences of health and lifestyle. It is not just a website about the medical facts, this is about real people and real lives.
Cystic fibrosis
Information from NHS Choices - the government's patient information portal.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.
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Leaflets | Support | Patient+ | Guidelines | Weblinks | Poems | Videos | News | Products
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Related pages in Patient UK
Health Topic information leaflets related to this topic (^ top of page)
Cystic FibrosisSupport Groups related to this topic (^ top of page)
Cystic Fibrosis TrustPatientPlus articles related to this topic (^ top of page)
Children with Respiratory Difficulties Cystic Fibrosis Gastrointestinal MalabsorptionUK guidelines related to this topic (^ top of page)
Guidelines on Cystic FibrosisLinks to other selected websites related to this topic (^ top of page)
Pseudomonas Infection Pseudomonas Lung InfectionPoems and stories related to this topic (^ top of page)
Cystic Fibrosis My Cystic FibrosisVideos related to this topic (^ top of page)
Links to online videos on Cystic FibrosisPatient UK Newspaper (^ top of page)
Recent related news items
Gene find 'may curb lung mucus' Patient to doc Transplant doctor's new lungs are up to the job Gene modifies lung disease impact Cystic fibrosis gene cure closerAll news by related topic
Cystic Fibrosis newsRelated Products (^ top of page)
Medical equipment
Books
Cystic Fibrosis : A Family Affair Cystic Fibrosis. The Facts
Other - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
UK Guidelines
Online Videos
Medline
Other good health sites
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Here you can follow a link to view existing patient experiences on this subject, or to add your own
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Here you can follow a link to view existing patient experiences on this subject, or to add your own
This will offer you the usual PDF options i.e. document navigation, search, zoom and formatted print
Note: this is the best way to print the document
Note: this will open in a new window
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