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Cystic Fibrosis
UK sources of information and / or support
Cystic Fibrosis Trust (The)
The official Cystic Fibrosis Trust's Education and Information Site.
INTOCF.COM
For CF patients, their families and friends. Contains resource links, games, news, articles, and tips, as well as productinformation about Chiron Corporation's TOBI (an inhalable antibioticindicated for the treatment of CF patients with Pseudomonas aeruginosa),proper maintenance of the nebuliser used in administering TOBI, etc.
Medicine Guide for Cystic Fibrosis
Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat cystic fibrosis.
Cystic Fibrosis Medicine
A non profit web site with the aim of providing free information to professionals involved with the treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family. The site has been created and is maintained by a multidisciplinary clinical team who are actively involved in the treatment and day-to-day care of people with cystic fibrosis.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
comprisesan international network of health care professionals, researchers andconsumers preparing, maintaining, and disseminating systematic reviewsof randomised control trials in the treatment of cystic fibrosis andother genetic disorders.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Cystic FibrosisPatient Support related to this topic (^ top of page)
Cystic Fibrosis TrustMedical reference articles in PatientPlus related to this topic (^ top of page)
Children with Respiratory Difficulties Cystic Fibrosis Gastrointestinal MalabsorptionUK guidelines related to this topic (^ top of page)
Guidelines on Cystic FibrosisOnline videos related to this topic (^ top of page)
Online videos on Cystic FibrosisRecent news items related to this topic (^ top of page)
Deadly bug early detection hope Ballet is not just a passion for me. It's a dance for life, says cystic fibrosis sufferer Cystic fibrosis drug Venomous clues in lung bug battle Drug hope for cystic fibrosis Simple powder to beat 2,400 genetic diseases goes on sale in two years New blood test to spot Down's syndrome at seven weeks leads to designer babies fear Pigs to aid research into cystic fibrosisLinks to other selected websites related to this topic (^ top of page)
Pseudomonas Lung InfectionPoems and stories related to this topic (^ top of page)
Cystic Fibrosis My Cystic FibrosisOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
*** NEW *** Patient UK Newspaper
Cystic Fibrosis newsMedical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
Cystic Fibrosis : A Family Affair Cystic Fibrosis. The Facts
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.