Sign inCystic Fibrosis
UK sources of information and / or support
Patient UK
Has a leaflet called Cystic Fibrosis.
Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of cystic fibrosis.
TOBI
For CF patients, their families and friends. Contains resource links, games, news, articles, and tips, as well as product information about Chiron Corporation's TOBI (an inhalable antibiotic indicated for the treatment of CF patients with Pseudomonas aeruginosa),proper maintenance of the nebuliser used in administering TOBI, etc.
Cystic Fibrosis Medicine
A non profit website with the aim of providing free information to professionals involved with the treatment of cystic fibrosis, it has an open access (public) section available to both patients and family.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
Comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Breathing Games for Young Children with Cystic Fibrosis
Information from Cambridge University Hospital NHS Foundation Trust.
Cystic Fibrosis
Young person's experience of cystic fibrosis from Youthhealthtalk.
Cystic Fibrosis
Information from emc Medicine Guides.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.