Sign inCraniofacial Disorders
UK sources of information and / or support
Craniofacial Support Group
Aims to provide support and information to families and individuals with any of the conditions or syndromes having Craniosynostosis or Craniostenosis as a common thread (including Scaphocephaly, Trigonocephaly, Plagiocephaly, Brachycephaly, Apert's Syndrome, Crouzon's Syndrome, Cloverleaf Syndrome, Pfeiffer's Syndrome, Saethre-Chotzen Syndrome, Van Buchem's Syndrome, Soto Syndrome, Proteus Syndrome, Hypertelorism, Fronto-nasal Dysplasia).
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.