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Creutzfeld-Jacob Disease (CJD)
UK sources of information and / or support
CJD Support Network
Provides support to individuals and families concerned with all forms of CJD (Creutzfeld Jakob Disease).
British Brain and Spine Foundation
Have very good information booklets which you can download, including several on CJD.
The UK Creutzfeldt-Jakob Disease Surveillance Unit
Monitors the incidence of CJD in the United Kingdom
Health Protection Agency
Provides a detailed description of Creutzfeldt-Jakob Disease as well as numerous links to useful sources of information.
Department of Health
The Department of Health provides policy and guidance with reference to Creutzfeld-Jacob Disease.
Patient safety and reduction of risk of transmission of CJD via interventional procedures
A patient guide to complement the NICE national guideline for health professionals called Patient safety and reduction of risk of transmission of Creutzfeldt-Jakob disease (CJD) via interventional procedures.
Variant Creutzfeldt-Jakob Disease And The Risks From Blood Transfusion
From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.
Creutzfeldt-Jakob disease
Information from NHS Choices - the government's patient information portal.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clincal Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.
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Related pages in Patient UK
Support Groups related to this topic (^ top of page)
CJD Support Network National Creutzfeldt-Jakob Disease Surveillance UnitPatientPlus articles related to this topic (^ top of page)
Creutzfeldt-Jakob Disease Dementia Help and Advice for Relatives of Demented Patients Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mini Mental State Examination (MMSE)UK guidelines related to this topic (^ top of page)
Guidelines on Creutzfeldt-jakob DiseasePatient UK Newspaper (^ top of page)
Recent related news items
Human form of mad cow reported in Italy New research shows why young people are more prone to CJD Coroners 'reject plea over vCJD' vCJD carrier risk 'overestimated' 800 haemophiliacs given tainted blood at risk of vCJDAll news by related topic
Bovine Spongiform Encephalopathy news Creutzfeldt-jakob Disease newsRelated Products (^ top of page)
Medical equipment
Books
Other - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
UK Guidelines
Online Videos
Medline
Other good health sites
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Here you can follow a link to view existing patient experiences on this subject, or to add your own
This will offer you the usual PDF options i.e. document navigation, search, zoom and formatted print
Note: this is the best way to print the document
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