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Creutzfeld-Jacob Disease (CJD)
UK sources of information and / or support
CJD Support Network
Provides support to individuals and families concerned with all forms of CJD (Creutzfeld Jakob Disease).
British Brain and Spine Foundation
Have very good information booklets which you can download, including several on CJD.
The UK Creutzfeldt-Jakob Disease Surveillance Unit
Monitors the incidence of CJD in the United Kingdom
Health Protection Agency
The Health Protection Agency provides a detailed description of the condition as well as numerous links to useful sources of information.
Department of Health
The Department of Health provides policy and guidance with reference to Creutzfeld-Jacob Disease.
Patient safety and reduction of risk of transmission of CJD via interventional procedures
A patient guide to complement the NICE national guideline for health professionals called Patient safety and reduction of risk of transmission of Creutzfeldt-Jakob disease (CJD) via interventional procedures.
Variant Creutzfeldt-Jakob Disease And The Risks From Blood Transfusion
From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clincal Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Patient Support related to this topic (^ top of page)
CJD Support Network National Creutzfeldt-Jakob Disease Surveillance UnitMedical reference articles in PatientPlus related to this topic (^ top of page)
Help and Advice for Relatives of Demented Patients Jakob-Creutzfeldt Disease Mini Mental State Examination (MMSE)UK guidelines related to this topic (^ top of page)
Guidelines on Creutzfeldt-jakob DiseaseRecent news items related to this topic (^ top of page)
Scots doctors pioneer trial to remove 'mad cow' risk from donated blood Experts study possible CJD breakthroughOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
*** NEW *** Patient UK Newspaper
Creutzfeldt-jakob Disease newsMedical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.