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Brain Tumours

UK sources of information and / or support

Patient apple icon (PatientApple.gif)  Brain Tumour Action

A voluntary organisation with five major aims:

  • Support for relatives and sufferers of brain tumours
  • Counselling for those who wish it
  • Information on brain tumours and their treatment
  • Education of the public about tumours
  • Research into brain tumours and their treatment

Patient apple icon (PatientApple.gif)  Brain Tumour UK

Provides information, support and it promotes research as well.

Patient apple icon (PatientApple.gif) Brain and Spine Foundation

Have very good information booklets which you can download, including one called 'Brain Tumours' and one called 'Spinal Tumours'.

Patient apple icon (PatientApple.gif) Samantha Dickson Brain Tumour Trust

Exists to find a cure for childhood and adult Brain Tumours through funding research and to offer support, hope and information to patients and their carers.

Patient apple icon (PatientApple.gif) SDBTT Astro Fund

Gliomas are the most common type of primary brain tumour; of these, 30% are low grade. SDBTT Astro Fund was founded in 2001 to: raise funds for research; gather information; raise awareness; and, offer support to patients and carers affected by low-grade gliomas.

Patient apple icon (PatientApple.gif) Robert Bradford MD FRCS

Personal site of London-based consultant neurosurgeon. Contains some detailed information about anatomy of the brain and central nervous system, conditions which affect it (including brain tumours) and treatment options for these.

Patient apple icon (PatientApple.gif) Medulloblastoma and PNET brain tumours mailing list

This free mailing list is for discussion of medulloblastoma and PNET brain tumours by parents, patients and professionals

Patient apple icon (PatientApple.gif) Meningioma UK

Offers support and information to patients and carers affected by meningioma.

Patient apple icon (PatientApple.gif) Pituitary Foundation

Provides support to people with pituitary conditions including pituitary tumours.

Patient apple icon (PatientApple.gif) Brain Tumours

A patient guide to complement the NICE national guideline for health professionals called Brain Tumours.

Patient apple icon (PatientApple.gif) Photodynamic Therapy for Brain Tumours

A patient guide to complement the NICE national guideline for health professionals called Photodynamic Therapy for Brain Tumours.

Patient apple icon (PatientApple.gif) Medicine Guide for Brain Cancer

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat brain cancers.

Patient apple icon (PatientApple.gif) BANA (British Acoustic Neuroma Association)

A patient organized and administered information and mutual aid group, founded in 1993. Exists for mutual support, information exchange and sympathetic listening.

Patient apple icon (PatientApple.gif)  Oscar - Offering Support to Children And Relatives

An Oxford Radcliffe Hospital based children's charity. Focus is on support and care ofbrain and spinal tumour cases.

Patient apple icon (PatientApple.gif) Ellie Savage Memorial Trust

The main aims of the Trust are to help other children living with cancer, to provide support and information for their families and to raise money for research into brain tumours.

Patient apple icon (PatientApple.gif)  Desmoplastic Infantile Ganglioglioma

Information and support given by a family affected by this condition. Keen to get in touch with other familes affected by this rare tumour.

Patient apple icon (PatientApple.gif) Macmillan Cancer Support

Information and support for people with cancer. Includes detailed information about brain tumours.

Patient apple icon (PatientApple.gif) CancerHelp UK

CancerHelp UK is a free information service about cancer and cancer care for people with cancer and their families. It is brought to you by Cancer Research UK. They believe that information about cancer should be freely available to all and written in a way that people can easily understand.

Patient apple icon (PatientApple.gif)  Brain Tumours

Information from the North London Cancer Network.

Patient apple icon (PatientApple.gif) Royal Marsden

A leading UK cancer centre, recognised worldwide for the quality of its services. Site includes comprehensive, authoritative patient information. See their Patient Information section.

Patient apple icon (PatientApple.gif) Brain tumour (benign)

Information from NHS Choices - the government's patient information portal.

Patient apple icon (PatientApple.gif) Brain tumours

Information from BUPA.

Contact details of further groups concerned with cancer may be found on the Patient UK cancer page


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.


Checked: 2 Apr 2009

Comprehensive patient resources are available at www.patient.co.uk

The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.

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Related pages in Patient UK

 Cancer of the Brain and Brain Tumours

Support Group Brain Tumour Action
Support Group Brain Tumour UK
Support Group British Brain Tumour Association
Support Group Samantha Dickson Brain Tumour Trust
Support Group SDBTT Astro Fund

 Brain Tumours in Adults
 Brain Tumours in Children
 Space-occupying Lesions

 Guidelines on Brain Tumour

 Links to online videos on Brain Tumour

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