Brain Tumours

UK sources of information and / or support

  Brain Tumour Action

A voluntary organisation with five major aims:

• Support for relatives and sufferers of brain tumours
• Counselling for those who wish it
• Information on brain tumours and their treatment
• Education of the public about tumours
• Research into brain tumours and their treatment

  Brain Tumour UK

Provides information, support and it promotes research as well.

 Brain and Spine Foundation

Have very good information booklets which you can download, including one called 'Brain Tumours' and one called 'Spinal Tumours'.

 Samantha Dickson Brain Tumour Trust

Exists to find a cure for childhood and adult Brain Tumours through funding research and to offer support, hope and information to patients and their carers.

 SDBTT Astro Fund

Gliomas are the most common type of primary brain tumour; of these, 30% are low grade. SDBTT Astro Fund was founded in 2001 to: raise funds for research; gather information; raise awareness; and, offer support to patients and carers affected by low-grade gliomas.

 Robert Bradford MD FRCS

Personal site of London-based consultant neurosurgeon. Contains some detailed information about anatomy of the brain and central nervous system, conditions which affect it (including brain tumours) and treatment options for these.

 Medulloblastoma and PNET brain tumours mailing list

This free mailing list is for discussion of medulloblastoma and PNET brain tumours by parents, patients and professionals

 Meningioma UK

Offers support and information to patients and carers affected by meningioma.

 Pituitary Foundation

Provides support to people with pituitary conditions including pituitary tumours.

 Brain Tumours

A patient guide to complement the NICE national guideline for health professionals called Brain Tumours.

 Photodynamic Therapy for Brain Tumours

A patient guide to complement the NICE national guideline for health professionals called Photodynamic Therapy for Brain Tumours.

 Glioma (newly diagnosed and high grade) - carmustine implants and temozolomide

A patient guide to complement the NICE national guideline for health professionals called Glioma (newly diagnosed and high grade) - carmustine implants and temozolomide.

 Medicine Guide for Brain Cancer

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat brain cancers.

 BANA (British Acoustic Neuroma Association)

A patient organized and administered information and mutual aid group, founded in 1993. Exists for mutual support, information exchange and sympathetic listening.

  Oscar - Offering Support to Children And Relatives

An Oxford Radcliffe Hospital based children's charity. Focus is on support and care ofbrain and spinal tumour cases.

 Ellie Savage Memorial Trust

The main aims of the Trust are to help other children living with cancer, to provide support and information for their families and to raise money for research into brain tumours.

  Desmoplastic Infantile Ganglioglioma

Information and support given by a family affected by this condition. Keen to get in touch with other familes affected by this rare tumour.

 Macmillan Cancer Support

Information and support for people with cancer. Includes detailed information about brain tumours.

 CancerHelp UK

CancerHelp UK is a free information service about cancer and cancer care for people with cancer and their families. It is brought to you by Cancer Research UK. They believe that information about cancer should be freely available to all and written in a way that people can easily understand.

  Brain Tumours

Information from the North London Cancer Network.

 Royal Marsden

A leading UK cancer centre, recognised worldwide for the quality of its services. Site includes comprehensive, authoritative patient information. See their Patient Information section.

 Brain tumour (benign)

Information from NHS Choices - the government's patient information portal.

 Brain tumours

Information from BUPA.

Contact details of further groups concerned with cancer may be found on the Patient UK cancer page

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.