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Batten Disease

UK sources of information and / or support

Patient apple icon (PatientApple.gif) Batten Disease Family Association

The principal aim of the group is to provide contact and support to families affected by Batten disease. Families are kept informed about recent developments and research at a national and world-wide level. The BDFA hopes to raise awareness of the illness and hopefully in the future to be able to raise funds to facilitate further advances in understanding and perhaps one-day treating Batten disease.

Patient apple icon (PatientApple.gif) Batten Disease

Information from Contact a Family.


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.















Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

Advertise on this site










Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

Advertise on this site


PS - Health and Poverty

Perhaps the biggest cause of ill health in the world is poverty. Help to Make Poverty History. For example, why not lend some of your money to disadvantaged communities to enable them to trade their way out of poverty through schemes such as Shared Interest.

See also MAKEPOVERTYHISTORY North East for details and links to campaigns against poverty.

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