Adrenoleukodystrophy

UK sources of information and / or support

 Adrenoleukodystrophy Family Support Trust

A national registered charity, specifically for children who are victims of the life threatening genetic disease called Adrenoleukodystrophy, or ALD for short. The Trust offers help and support to ALD sufferers and their families, and raises public awareness of this horrific killer disease, also known as Schilder's Disease and Sudanophilic Leukodystrophy.

 ALD Life

Support group for families affected by adrenoleukodystrophy andadrenomyeloneuropathy. Offers practical support and advice and raisesfunds for medical research.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.