Tel: 01332 365676
The Prader-Willi Syndrome Association UK was founded in 1981 and is a registered charity.
The Association's aim is to provide support and information for parents and carers, to promote knowledge and awareness of the syndrome amongst professionals as well as the public and to improve the quality of care given to people with Prader-Willi syndrome. Information leaflets, handbooks, medical texts and papers are all made readily available and the Association actively encourages medical research.
Local support groups and networks have been formed in some areas. Training for professionals in health, education and social services is also available.
The Association can also provide an advice and support service to people with the syndrome, as well as advice and information on benefit claiming.
Membership is free and open to anyone. Donations are welcome.
Last updated on 21/07/2012