I was diagnosed late in life(54)with idiopathic CD4 lymphopenia, CVID (IGg deficiency) after 4years years of critical illness trying to fight a virus that left me very weak and having to take early medical retirement as a lecturer. I was originally diagnosed with chronic fatigue syndrome.
My medical history includes recurrent opportunistic infections including pneunomia, bronchitis, severe flu. At one point with the severe muscle fatigue I thought I had MS but lumbar punctures although revealing raised protein levels seemed inconclusive. I had to give up gamma globulin therapy after a severe reaction to a new protein in sandoglobulin and am now reliant on antibiotics for infections.
Reading about Wiskott Aldrich syndrome seemed to link a lot of the symptons and reactions I have had.
Does anyone have similar experiences or knowledge about rare female carriers of this syndrome who also have developed the full syndrome?