Wiskott Aldrich syndrome and females

1. Guest 12 January 2010 at 10:57AM
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   I was diagnosed late in life(54)with idiopathic CD4 lymphopenia, CVID (IGg deficiency) after 4years years of critical illness trying to fight a virus that left me very weak and having to take early medical retirement as a lecturer. I was originally diagnosed with chronic fatigue syndrome.

   My medical history includes recurrent opportunistic infections including pneunomia, bronchitis, severe flu. At one point with the severe muscle fatigue I thought I had MS but lumbar punctures although revealing raised protein levels seemed inconclusive. I had to give up gamma globulin therapy after a severe reaction to a new protein in sandoglobulin and am now reliant on antibiotics for infections.

   Reading about Wiskott Aldrich syndrome seemed to link a lot of the symptons and reactions I have had.

   Does anyone have similar experiences or knowledge about rare female carriers of this syndrome who also have developed the full syndrome?

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2. helen57 6 February 2013 at 13:02PM

   I am a female 64 years of age. I had two sons born with Wiskott-Aldrich Syndrome. I am now having immune and health problems. Would you like to discuss this?

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