my 2 week old baby son has tetralogy of fallot..i cant stop crying and am so worried about how it will affect his life.can anyone in a similar situation email me at xxx and share their story with me and give me some positivity. he is not feeding well and is still in hospital and is due to meet cardiologists next week..whats ahead for me

Emis Moderator comment: I have had to remove the email address as we do not publish these. There will be a private messaging facility soon but in the meantime if anyone wants to contact ashton2010 outside of the forums reply to this message and ask Moderator to pass their email address on.