Im new here. Just thought I'd post as no-one around me seems to understand.
After being in pain for about ten years, I have finally managed to make progress with doctors!
Whilst at uni in about 2003 I was experiencing pain in my shoulders, back, neck and amongst other things also having really disorientating dizzy spells where it would feel like the floor would lift up over my head before coming crashing down. The doc then gave me some painkillers (big fat ibruprofen) which did nothing. I also got referred to a physio for a couple of sessions but again this did little. Many years on having tried lots of other therapeutic treatments such as accupuncture, massage therapy and reflexology I finally gave up and learnt to live with the pain.
Then 3 years ago I developed viral meningitis, was hospitalised for a week and was off work for nearly four months chronic fatigue, short term memory loss, being unable te remember words etc. I would get halfway through a sentence and forget what I was saaying for example. On the one occasion I did attempt to go back to work (about a month after my release) I was part way through teaching a lesson and looked at my class and didnt recognise any of them and wondered what year they were and what I was supposed to be teaching them.
Since then the memory has improved somewhat but my brain is still very foggy, especially when Im tired which is most of the time. I have incredible pain, particularly in my shoulders with milder pain elsewhere all over. I hobble like an old lady when ive been laying or sitting too long (Im 29), my sleep is awful and so im always shattered; some days I can hardly do anything Im so tired. I have no appetite, my jaw locks for absolutely no reason. I also get IBS type symptoms. And thats just the most annoying symptoms.
Last summer I finally found a doctor who took me seriously. I was prescribed diclofenac for the pain and when this didnt work I was given dihydrocodeine (although this actually doesnt work either). He also sent me for blood tests and referred me to a very uninterested Rheumatologist. They didnt find anything. I then had to move house and luckily found another wonderful doctor who took me even more seriously and after giving me diazepam for the spasms in my shoulder, referred me to a CFS/ME/FMS specialist.
I have my first appointment on March 12th (or 13th, I cant remember) and Im over the moon, albeit apprehensive. Whilst I dont particularly want to have anything wrong with me, Im desperate for someone to finally tell me that Im not imagining it or making it up like many of the people around me seem to think.
Sorry for the essay but its nice to be able to have the opportunity to offload to people that understand.