I am new to this site and find reading other patients' reports both comforing and helpful.
I have had PMR for ten years but was not diagnosed early. A Rheumatologist put me on 20 mg Pred and the effect was miraculous. As I gradually lessened the dose, the aching began a little. However, I was apprehensive of being on steroids and wanted desperately to lose weight - so I reduced the amount of Pred until I was off it over 2 years.
Since then I have been up and down - returning twice to steroids for relief. My doctor won't prescribe the higher dose so have been on 7.5mg reducing to 2mg which I am on now.
Recently the Polymyalgia seems to be shifting its attacks from lower back to right leg and now to my shoulder. Can anyone else tell me if physiotherapy or accupuncture will alleviate the pain?
For the first time I feel very worried because I have a new little grandchild who I love looking after whenever I am needed. Of all times to be unable to use my arm freely, this is the worst!
I hope to start physiotherapy soon and am looking into acupuncture. I wonder whether trying so hard to stay off steroids is sensible in the end? Would welcome any comments and thank everybody out there to whom I send my best wishes for their own recovery.