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Overactive Thyroid Graves Part 4

  1. Evening All,

    Having a good read through everyone's posts, been busy with family get togethers and birthdays etc have another one on Saturday a BBQ at ours!! Hope the sun shines and everyone leaves early (sounds awful doesn't it)

    Maria that's great news about your husband you must be so relieved.

    Marigold we have a wonky tap hopefully getting sorted out tomorrow, kitchen 99% finished and he has given us the final bill, I'm not paying till its 100% finished, they don't seem bothered now most of its done.

    Sue I hope you get everything sorted and your chest infection clears up soon what a time you are having.

    Bess well done you getting your propanolol down to 10 mg, you and your broomstick are welcome anytime!

    Steph the only time I had constipation was when I was very under active after the RAI I think I just tried drinking more water and eating more fruit. I love Zumba myself and my daughter do it on the Wii Fit I have also just started doing Callanetics which is more toning than aerobic. Anything to get this weight off I have put on 3 stone over the course of this illness, have lost a stone but boy it's taken some doing much much slower than before I was I'll.

    Jane, Barry how are you both?

    I feeling pretty good most of the time we are off to Spain in 3 weeks time and can't wait to escape this rain. I have to book my next lot of blood tests before we go, can't quite believe that's been 6 months since my last ones.

    The dishes/ironing are calling so better sign off.

    Kat xxxx

  2. Hi Everyone,

    Since being diagnosed with Graves disease and having some of the worst symptoms ever plus my Dr from Britain saying to me my thyroid blood results were the WORST he has ever seen .... I am pleased to give the following advice if you have trouble sleeping please try zumba ..... someone suggested it to me a few weeks back ... I was like No way ... maybe I don't like change ..

    I was having trouble sleeping .. before this my sleep was very good ....

    Every night I do Zumba ( I do a group fitness class) I have been able to sleep like a log and also it helps with my running.

    You can buy the DVD off internet or you tube it. But seriously if you can;t sleep ... I think it maybe Maria who is complaining please give a form of zumba a try because its excellent. .... look it up

    Got my bloods and am very very very happy

    Results as follows;

    Free T4 24pmol/L (10 - 24)

    TSH <0.01mIU/L (0.04 - 4.00)

    Free T3 15.9 pmol/L (2.5 - 6.0)

    CBC all within normal ranges

    Originally my T4 was in the 80s ...... SO so pleased!!!!

  3. Hi guys

    my recent blood test results

    Free T4 24pmol/L (10 - 24)

    TSH <0.01mIU/L (0.04 - 4.00)

    Free T3 15.9 pmol/L (2.5 - 6.0)

    CBC all within normal ranges

    T4 has come down HUGELY ... which is very pleasing news. Before in May it was like 84!!!! - I was so sick.

    I am feeling my usual self ... not as broken as before ...... I think the exercise helps loads.

    Facebook has a graves disease site which also provides some very interesting pictures of people with the eye disease.

    This afternoon I got invited to meet a 35 year old lady with Graves disease, She was diagnosed at 26 years old and was only on medicines for 6weeks.... YES thats 6 weeks ... she is no longer on any medication ... her only genetic link to hypthyroid is her Mum was diagnosed at 70 years old and also too was on carbimazole for a very short period of time! So it can happen.

    My thesis is not going too good : (...... I speak to the head supervisor this week ... prior to this I had a brillian track record ... but since getting this i felt obliged to go to work etc ..... my friend who also has graves said hopefully they will unterstand my circumstances .... fingers crossed.. its bee hard working with his!!!!!!

    The girl I met today with graves said how she rushes around .... during my worst period I did this but since being on carbimzole thats helped to slow me down. Rushing is terrible!

  4. A topic I would appreciate some discussion on ....

    Sorry guys had to go to Zumba so didn't have time to add this to my last post... I would like to hear about others experiences etc...

    I have flown in airplanes all my life -- gone on 10hour plane journeys overseas and always experience very terrible jet lag and air sickness. I recall flying from Auckland to Los Angeles as a young child and mum having to get disturb the other passengers behind us to use their sick bags as my brother and I had already used ours.

    Before April I was in fine health ... I flew to Hong Kong and Singapore from New Zealand and was so sick it wasn't funny.

    I've been asked what set this off.... I think physiologically my body cannot handle flying.... especially after landing on ground I can still feel the plane move.

    Does anyone else experience this?

  5. Hi Steph,

    I haven't done long haul flights so cant help with this. I hate flying and only do it if I absolutely have to. I know what you mean about the movement thing. When I have been driving for hours, I feel as if the car is still moving, especially when I try to go to sleep. It settles after a while. I have known friends who have been on cruises and they say that for about 3 days after returning home they feel as though the ship is still moving under them. I think your GP could give you something for the plane sickness or perhaps you can buy something from the chemist ? Might be worth talking to the pharmacist.

    I hope you get on ok with your thesis. Take care.

    Hope everyone ok today,

    Bess xx

  6. Hello gang.

    Hi Steph. I'm pleased you're feeling better. The lady you met has been very lucky. As you know I was in remission for 40 years, but there's always the chance that it will come back.

    I think it's fairly common to feel that you're still moving when you stop travelling. As Bess says it settles after a while. Have you tried travel sickness pills? It would be worth giving them a go. Take care.

    Hi Bess. I'm having an aurafree weekend. I hope you are too. smile I'm pleased you enjoyed your visit to the Barnsdale Garden. We like looking round gardens too, and getting ideas for our garden. It would help if we could get some gardening done though, I've never seen so many weeds. It never seems to stop raining. Take care.

    Thinking of everyone.

    Marigold

    xxxx

  7. Hello everyone ,

    Not been on much lately,just been reading Through all the you're posts.

    I've been doing ok although just moved house which has been stressful.

    My last bloods were showing tsh 3.41 and I continue to take 25mcg thyroxine daily.

    Feel ok most of the time although I get tired alot quicker than I used to since the rai especially if I over do things.

    Anyone still hear from dave ?

    Take care baz

  8. Hi all,

    Just to let you know that I plan to move all of the Grave's disease discussions (and any other hyperthyroid related topics) in to the Hyperthyroid topic itself but giving you a bit of warning in case you need to change any bookmarked links etc. When I do this, Grave's and others will disappear from the site altogether as a topic title. I have asked for a bit of development that will allow me to create the title Graves but it will actually just redirect users to Hyperthyroidism but this may take a little while.

    If anyone has any objections or comments either post here and I can remove them after to save filling up the thread or send me a Private Message.

    Regards,

    Alan

  9. Hi everyone

    HAd hospital appointment today, my T4 is down to 17 from 45 after 6 or 7 weeks on PTU. I have opted for RAI in a few weeks time. Does anyone who has had this regret it? Did you have any reaction after in the first few days after treatment? I know I'm likely to go hypo but don't want to make the wrong decision! Glad for any advice.

    Thanks

    AgW

  10. Hi can someone tell me the difference between PTU therapy and carbimazole therapy. thanks

  11. Hi Steph

    They both reduce thyroxine production though carbimazole is used most commonly in UK. I had to change to PTU because I had bad side effects from carb.

    AgW

  12. Hi Agw,

    When I first started carbimzole I felt like I had been in a car crash for 1 day- having never been in any real pain before it was terrible. please share more about side effects thanks

  13. hi everyone ,

    just got my results back............... B12 228 (160 -980)

    T4 10 .7 (9. 0- 23.0)

    T3 0.24 (0.20-4.50)

    TT3 2.9 (1.1-2.6)

    my B12 shows an insufficiency

    my t4 way too low

    My next problem is trying to get intouch with my endo rolleyes why he hasnt phoned me with a Tsh that low ?

    Will phone up today to try and get an app : not that i have much hope of that

    I have been feeling better on the T3 but my boby knows its undermedicated of T4

    Hope everyone is well ,thinking of you all

    waiting for my first cup of tea

    love sue xxxx

  14. Hello everyone.

    Hi Barry, glad you're doing ok. Moving house is horrible, hubby says we're not moving again, but he said that before we moved here.

    I get very tired if I do too much, but mostly I'm fine.

    No word from Dave, I think he's gone AWOL. Take care.

    Hi AgW. You'll feel better now that your T4 has come down. I've never regretted having RAI, the best thing I've ever done. I went hyper again just after I'd had it, that's due to the thyroxine stored by the thyroid going into the bloodstream after the RAI. You don't have to go hypo, different endos have different ways of treating their patients. I was on block and replace before the RAI, and went back onto it for six months until my blood levels settled down. I feel great now, feel like I've got my life back. Good luck, I hope everything goes according to plan.

    Hi Sue. Did you manage to contact your endo? It's hard work isn't it?

    Your T4 is far too low. Did they check your TSH?

    We've managed to do some gardening this afternoon, but it's raining again now. Makes a change.

    Hope everyone else is ok. Have you got the builders sorted out Kat? Bess, hope you are still aurafree, I am.

    Marigold

    xxxx

  15. Hi everyone,

    I would appreciate feedback/opinions on this ........

    Prior to the graves disease diagnosis my work had been superior .... I even had a certificate of three years presented to me in my early 20s for absolutely NO sick days.

    I started on my thesis about six months ago .... my other collegues have been sick as- I have never been in an environment not since my school days where someone is coughing constantly or sneezing for weeks on end. They have provided us with vitamin c supplements etc to help.

    My thesis wasn't going exactly as planned so I was referred to a senior supervisor - who you normally go to, to get a, "telling off" ..... anyway I explained to him - had never met him really before that I had recently been diagnosed with Graves ... and how my inital Dr had gave me the wrong dose of medicine. I even produced my Blood results which were SEVEN times higher than usual ...

    The Senior supervisor was very sympathetic with me -- as he too had been given the wrong medicine for his heart problems!

    I have never in my life been so terrible at work...

    .... but what "Stumped " me was this comment from an assistant ... She said I looked stressed!!!!!!! .... I am not irritated when I write this ... but I don't feel it!~!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    I know in the past I walked really fast/ talked fast did tasks fast ..... but since being on medicines this has slowed down!

    A friend of mine who is a high court judge said to me when she was on carbimazole therapy for about three weeks she felt calmer .... a workmate said to her she seriously thought she was on anti-depressants this friend was offended.

    I am a good person ..... I don't feel high stress and can handle my work... I did notice a friend when I was really sick who came to look after me - she was washing up my pots very slowly .. maybe too slowly for me ( i was just observing ) ...

    Being on therapy has slowed me down in terms of how I go about my everyday activities.

    Any comments would be appreicated

  16. Too add ...

    I spoke to a close friend regarding my rushing and how some people thought I appeared stressed!

    She said my graves diagnosis- as I told her the symptoms was a missing piece to the puzzle etc

    and an interesting comment she said was she wondered how long it had been coming to me?

    How long did it take for the symptoms to develop in you guys? thanks

  17. Hi Steph. Being anxious, stressed and rushing about are all symptoms of Graves/hyperthyroidism. It is one of those situations where you don't realise that you've felt stressed and anxious and you've been rushing around until you feel well again and you notice the difference. Take care.

    Marigold

  18. Carb side effects for me were very swollen legs, very tense, red and itching which became so bad that I stopped taking them (noticed feet were swollen after first tablet). Never had swollen legs before in my life and it has taken nearly 2 months for the swelling to go completely.

    Thanks for RAI reassurance Marigold.

    AgW

  19. Hi Marigold : THANKs for the response. Can you give me an indication of how long you felt like that for?

    AGW : My legs were swollen the first time I took them ... i didn;t know till a workmate blerted out about my legs. never had the swelling too. when I sleep I had my legs raised by a pillow - try that.

    How long did you have symptoms for?

  20. hi all do you know if 3t toxicosis is the same as graves disease

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