OK I have held my tongue for too long now.This so called NHS has and is still letting us all down.I began to show symptoms of HS when I became sexually active at around 14 years of age.I was diagnosed 2 years ago at age of 35.This diagnosis after at least 8 different GP's and some 20 or more casualty visits (what a joke).I was only diagnosed because I was due for surgery and was indeed told that it was an uneccessary operation as the surgeon diagnosed it.Ever since my diagnosis of HS it has been a constant battle to get the illness recognised.I FOUGHT FOR 18 MONTHS TO GET disability living allowance.I get mid rate care and lower mobility components.
The illness over a twenty year period has cost me some 20 jobs,many places of accomodation and two long term relationships..
I have had an open sore on my perineum for over 6 years now and constantly inflames and leaks blood and pus.This area has inflamed to the point that is all linked up with underlying boils at top of my legs.Recently there have been several new members of the boil brigade.I now have two open wounds in my armpit which smell foul (not disimilair to a chlorine smell) of which i am always aware of.Also I now have one on my ear which is distressing to me as the whole world can see it.
THE HARDEST PART OF THIS ILLNESS IS THE CONSTANT DEPRESSION AND SENSE OF FAILURE IN LIFE.
In this day and age when we can go to the moon its ridiculous that there is no cure and no real treatment.This is due to what I believe is complete failure to recognise this alledged RARE disorder.It is my contention that this is not as rare as people think due to constant misdiagnosis.
WHAT DO YOU THINK?
(Sorry but as is our policy, the email and web address have been removed)
all my best wishes
Geoff "KEDSTER" Keddy
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