MVD Surgery

1. rainey57 8 August 2012 at 04:00AM
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   Hi I'm from canada and I had the surgery 2yrs this august. Unfortunetly it didn't work. I have had it for well over 15yr before I had the surgery I had tried botox and it didn't work. I had the surgery and I was told that the sucess rate was about 98% . I had the surgery and the doctor told my family that by weeks (7days) end the spasms would be gone. They were not!!! It was improved by the surgery about 45%. But as a result of the surgery I have numerous other severe problems. They include severe headaches when laughing,bending,lifting, running exersiceing having a bowel movement or any of the things I took for granted. I was told by the doctor that I was a uniqe individual and that given time the spasms would stop...they have not. i would love to know if any one else has experienced any thing like this and what they are doing to inprove their quality of life.

   Thanks for reading

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2. YKL 11 August 2012 at 13:10PM

   Hi Rainey,

   Sorry to hear that your spasms are still present 2 years after mvd surgery. It has been just over 7 months since mine and although I am about 30-40% better (can't be precise about this) I am still getting these spasms, especially when jaw movement is involved.

   I have started a thread 'Spasm-free after mvd surgery?' on this forum back in March 2012, where I have compiled reports from members of the HFS association who took some time after their surgery to become spasm free. There is a total of 38 reports, but to save you time going through each of them, I counted 7 who took more than 2 years - 1 took almost 2 years, 2 took 2 and a half years, 3 took 3 years and finally 1 took over 4 years! I understand that each case is different, but I hope that this gives you some encouragement that you too will become spasm-free however bleak it may seem right now.

   Best wishes

   Leon

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