Booked our 25th Anniversary holiday to Bali and Singapore back in september 2011 for 25th july 2012 which is now fast approching. Although I havent been offically been diaganosed yet, it is definateiy FS from all the research and treament done so far. My dilemma is whether to go on the once in a lifetime holiday with this exhausting condition. Has anyone out there been on a long haul? Should I go or cancel for next year when hopefully things have settled a bit????

By the way what a great site, it helps to know I am not alone in this struggle and there is an end.