Reply to Green Granny
I dont see any reason why you shouldnt go on holiday depending on what it is If you were going to climb Everest a definate NO !! I am on my second bout of PMR this one started last October I started on 20mg and am now down to 7.5 but am struggling to get below this My GP also says listen to your body but she also gives me monthly blood tests and nothing is reduced unless they have improved Everyone seems to have very different levels of ESR and CRP for their doseage on this sight so I think it is the improvement which is important not just the level as the range for normal is quite large I dont have GCA and have managed 2 holidays since I have had my 2nd bout of PMR but these have been relaxing holidays and I do have my Husband to carry the suitcases !! My Dr said not to try and reduce my steroids again until a week after I got back and this week I have done things slowly and rested ready for I hope a reduction next week Having had this illness before I know how easy it is to get depressed with it when you have to rest so much so if you feel a holiday would do you good and you could cope with it go for it I dont think it would be possible to have had PMR for just 6mths I had it for 2 years the first time and I was 'Text Book' but I have a feeling I am not going to be so lucky this time around !! I am so glad I have found this site this time as it certainly helps to speak to people who understand As a lot of people find it a bit hard to accept you are ill if you look just the same !!