in this discussion +115 following Follow this discussion

I know its was amlodipine!

I am a healthy 58 yr old and normally very active. BP was rising over the last year or so to 178/98 and so this Jan my Doc put me on Amlodipine 5mg. Thats when it started. Firstly with a loss of energy, then total loss of stamina, I felt like a Zombie all the time. As the month progressed I started to get forgetful, dizzy spells, very tingly left hand and painful joints all througfh my left side. BP did not drop as fast as hoped so Doc added Lisinopril 2.5mg. Hey... off with the faries now! After two weeks I could not concentrate on anything people were telling me and to the point that I was becoming detached from the real world. And that was only after a couple of weeks on the cocktail. I decided to trial which drug was causing this and first removed the Lisinopril for a few days then swapped over to stopping Amlodipine. Cor.. what a difference. Almost the next day after stopping Amlodipine I started to recover. After just one week people at work are now saying 'welcome back' and I know what they mean. BP not down yet but I am never going near Amlodipine again, its a wrecker!

Has anyone else had anything like my reaction?

F Report Share
Support this with a vote _ 16

421 Replies

Next
  • bigphil

    I took amlodopine for one month alongside of lisinopril then suddenly one saturday i was hit by agonising muscle pain particularly in my back and legs . I have scoliosis in the lower back so wasnt sure if I had hurt it at work and caused a flair up of inflamation. Istopped taking amlodopine and things improved so i went back to see my doctor,he advised me to try again with it so i took one tablet that morning by six oclock that night the aches and pains had returned i didnt take it again and now thing are getting back to normal so am going back to doctors to get this drug taken away

    _ 0 votes F Report Share < reply to bigphil

  • Stacy

    Hi Bigphil I hope that your GP will listen to you and take you off this terrible drug once and for all. I can not believe how many people are suffering and GPs are still prescribing it . I think that Amlodipine is a very dangerous drug and that patients need regular monitoring to ensure that they are not suffering from these terrible side effects.They also need to have regular bloods checked to ensure that their blood levels and kidneys are ok. I am now taking Losatrin Potassium and have started to experience very bad neck and shoulder pain, but that could be due to the nature of my job and the fact that I have been working a very long stretch. Any way I do still feel rather drowsy after taking the medication, but it is something that I can work through compared to the total loss of five hours a day that I used to suffer after taking Amlodopine. We need to have our BP controlled however, we must also be able to have a good quality of life and be able to function otherwise what is the point of taking tablets that result in one being reduced to a Zombie. Take care and good luck .

    _ 0 votes F Report Share < reply to Stacy

  • Merlin

    Hi, I was told that my Blood pressure was too high and as I am in need of a small Operation the Doctor said that it could be that the Blood pressure reading might stop the Operation.

    I have had what is called High Blood pressure for many years and although when visiting the Doctor I have been told it’s high, some people suffer from “White Fright” which has the effect of raising the pressure when visiting a Doctor or Hospital.

    When finally I accepted the need to take a Tablet of late, I was given Amlodipine 5mg. This did not seem to have much effect at first, but I continued. Over about a month to 6 weeks I started to note how tried I became. I go to a Gym twice a week and before I took any Tablets did not seem to feel tried even after a work out, however lately I have. Plus a slow build up of Depression and now also a real problem of feeling lethargic. Waking up at night and having real problems getting back to sleep, so getting up tired is again something new for me. I suffer from Tinnitus and have done for many years, but of late the noise level has increased.

    To be frank as I have managed to reduce my Blood pressure before I started these tablets to 157/ 93 (using Beet-root capsules and weight reduction) but now I have been told by my Doctor to aim for 140ish and 80ish which I feel I can achieve using a Herbal treatment. Plus a feeling of pain in joints is also becoming a problem, so goodbye Amlodipine.

    _ 0 votes F Report Share < reply to Merlin

  • Stacy

    Hi Merlin I hope that you have managed to say goodbye to this horrible medication that is having such horrendous side effects on people. It is awful how one can go from being a very active out going happy person, to some one who becomes slow, lethargic, painful and depressed. I would get up in the morning and dread the time when my medication was due, because I would have to say goodbye to the rest of the day as I would be on a different planet an hour after taking the medication. Like yourself I began to feel depressed with no quality of life and could only just manage to get off of the sofa to make a cup of tea, due to lethergy and joint pain, also swollen feet and legs. Where as before I was always on the go, I could now hardly walk to the kitchen without feeling sick and dizzy and when I did eventually go out of the house I was bouncing off the walls of houses and looked as though I had been drinking all day. Work was out of the question and as for looking after my grandchildren well I think that the boot would have been on the other foot if my daughter had allowed me to watch them. She was very concerned about the change in me and so was my son. I appriciate that our BP has to be controlled but this medication is proving to be detrimental to our quality of life and is reducing many people to a Zombie status. I do think that changes in life style are of great benefit and will have a look at the Beet-root capsules that you have started taking. However I am at the moment taking Lorsatin Pottassium 25mg and this seems to be suiting me a bit better, so I will check that there will be no counter - indications with natural or herbal remedies. Still lets hope that if our BP can be stabilised then with change of diet, life style and reduction of stress we may be able to leave off or even take a less potent treatment for our condition. I am going to do some research into what trials have been completed on Amlodipine and what side effects have been reported. When my GP decided to take me off it she reported me as having had an adverse reaction to the drug also the Chemist whom I retuned the drugs to reported my reaction because she said that it was important that it was documented. Yet when I told her about the swelling and pain in my leg she told me that it was a common side effect. What I can not understand is why they are still prescrbing this drug. Any way good luck and I hope that things work out for you .

    _ 0 votes F Report Share < reply to Stacy

  • Merlin

    Hi, Stacy. I am a firm believer in helping ourselves. Sometimes we make our own problems, so when as in this case high Blood Pressure is diagnosed, we have to ask why. Of course there are many reasons, some may be down to a need for Doctors to be involved, but I know when I visit a Doctor I get agitated, so the pressure goes up.

    I spoke to my Doctor about this problem and he said if I can after sitting still and resting for about 5 mins and then take the reading and it reads 140ish over 80ish he says that’s good enough. So as I said I am now off the Tablets and will wait for at least a week may be two, taking readings everyday, and if the Pressure is stable and it’s within the range he states that’s the time I will go back and explain.

    I feel sometime that Doctors just don’t have the time to spend going into a deep cause which means that they reach for the Pills.

    But one should always be careful when not following the advice of a Doctor, after all we take the report a Motor Mechanic seriously and that’s just a Car.

    I did some research as to alternatives and that’s when I came to take Beet root Tabs. No side effect and the Juice is palatable (I don’t take that now).

    As for the symptoms I described they were starting to give me a worry, which is why I stopped; now I wait. It may be I can’t keep a stable blood pressure due to age, but I am going to give it my best shot.

    I hope things work out for you, Good luck

    _ 0 votes F Report Share < reply to Merlin

  • Stacy

    Hi Merlin I hope that you are ok. I have to agree with you that we can bring on our own problems and need to take a step back to find out what the causes are and what we can do about them. I come from a family who have all suffered from chronic hypertension which was controlled by a coctail of drugs yet they all lived in to their late 80's and 90's . I know that this has been a contributory factor to my condition, however I have also lost both of my parents in the last 15 months, Dad with Dementia and Mam with Cardiac failiure . As a family we did our best to care for them whilst holding down very responsible jobs so I suppose that once both of my parents died, then as nearly always happens, the carers become ill themselves. Still I recognised the reason that triggered my illness and that was Stress, ( there I have admitted to it now ) so I have taken a different approach to life and things are beginning to settle down. I may have to accept that I will have to remain on BP tablets due to my Genetic susceptibilety to Hypertension and that does not bother me as long as they do not disrupt my life. Lorsatin is not too bad and I have to go back in two weeks for a check up so may be my GP will put me back on the Bendrofluside that suited me six years ago when I had this problem, again due to stress. I have decided to take my self away for a weeks break to just relax and recharge because the last three years have been hard ones. I also hope that every thing works out for you and that your BP becomes more stable.

    Take Care

    _ 0 votes F Report Share < reply to Stacy

  • Merlin

    Hi, Stacy, Well only two days after stop taking the Tablets and my Joints are better and the Tinntus is very much quieter. I think that proves the effect the Tablets were having. Plus I keep a record of my Blood pressure and it really does not show a great deal of difference. So allowing the Pressure stays stable I shall after a week or two go back and tell the Doctor.

    My Mother did suffer from hypertension but she never needed tablets. Her metabolism must have acted as a damping down and I think I have inherited from her the same genes. However as I posted I do believe if we look deep inside at the way we live or more important the way we react to events, that tells a lot about how we deal with life. Age also must play a part, which is why at 73yrs old I have started workouts at a gym this does help plus losing weight, which is another factor.

    The stress you were under at the time of losing your parents must have contributed to your raised pressure, now you must start to try and relax. I took up Ti Chi and find it very calmer; un-fortunately I developed a problem with a sciatic nerve, which has meant I can’t go to practise now.

    Any break and spell away from the norm is beneficial, so good luck.

    When taking my pressure I do it at least three times so as to get a fair reading, but I am encouraged as to the results.

    I hope things work out for you and it pays sometime to check on our life style to see if that is causing problems. Mine I know doesn’t accept for reading Newspapers and trying not to wish we could rid ourselves of the politicians who speak with a fork tongues.

    Regards Merlin.

    _ 0 votes F Report Share < reply to Merlin

  • Stacy

    Hi Merlin I am so glad that you are feeling better since you stopped the dreaded tablets. I am now coping well with the tablets that I am taking so will give them a chance. Both my parents suffered form High Blood Pressure and so did my Granny and they were on medicaation so I will go with the Docs on this one but will hope that a change in life style will also help.However what annoys me is that, I do not smoke, I chose a healthy eating life style and do plenty of exercise however I do enjoy a glass of wine in the evening so why is it that I have high BP when others who drink, smoke, and eat of the chip pan have a healthy BP. It just goes to show that some times is it hereditary. Never mind I am going away for a week to the Isle Of Whight tomorrow to just relax and take in the majic of the Island . You take care now and let me know how you get on .

    _ 0 votes F Report Share < reply to Stacy

  • phoebebasing

    HELP!!!! Thank God I found this site,Iam on this horrific drug and rapidly my life/marraige/job is falling apart,Iam hoping someone will reply to me today so I can e-mail my phone no.to talk as really struggling to type as I dont remember where any of the keys are! Please, please can someone reply and thankyou so much.

    _ 0 votes F Report Share < reply to phoebebasing

  • Nigel

    Hi Phoebe. I started this thread a few years ago when getting into the same state that you are in now. In fact I am now 62 and fit as a fiddle. Still on other blood pressure drugs, but having removed myself from Amlodipine once i recognised the problems , I have never looked back.

    However I can still remember the experience and whole heartedly sympathise with you. I was on the same pathway as you are, but I don't think I allowed myself to travel as far. My advice now would be to see your doctor and talk to him about mine and the other's on this site's experiences with it. You need to be off it to get back to your life. I know it worked for me. Stacy would be another good one to talk to, I expect she will also post a comment, she is very helpful.

    If you would like to call me for a chat, email your number to xxx it helps to talk.

    Nigel

    _ 0 votes F Report Share < reply to Nigel

  • Emis Moderator

    Hi Nigel/Phoebe,

    I have removed the email address as we do not publish personal details such as these on the site.

    Nigel - I will email Phoebe with your email address.

    There will be a private messaging service going live very soon for direct contact between users.

    Regards,

    Alan (Emis Moderator)

    _ 0 votes F Report Share < reply to Emis Moderator

  • Merlin

    Hi Stacy, I believe in most cases that age and the "Genes" affect your Blood pressure. I have now been nearly a week without the Tablet; so far Blood pressure has remained more or less the same which is down from what it was, joint pain is very much better. Neither of my parents had to take Blood pressure Tablets but both my Sister's do. However both are over weight and both are lacking in excise. I used to smoke (gave it up about 13yrs ago) but do enjoy a good drink, but not continuously. Emotion I also believe plays a part in the high Blood pressure increase and trying to relax is something I am starting to get into.

    However all this depends on one's metabolism, which if like me who, assumes while going through the mythical forest behind each tree a Tiger lurks, is sometimes difficult.

    Give my regards to the Isle of White I have a very good friend who lives there.

    Regards Merlin.

    _ 0 votes F Report Share < reply to Merlin

  • Merlin

    Hi, Phoeb, after reading of your problems it's best to follow what Nigel says. I do know my "outlook" as to the way I was after only taking this drug for a very short time changed noticeably so get profession advice. I shall wait for another week and then try my Doctor again, but am dam glad I stopped taking this drug. What has me more then a little worried is why it was banned in some European counties.

    Regards Merlin

    _ 0 votes F Report Share < reply to Merlin

  • Stacy

    Hi Phoeb my heart goes out to you . Please go back back to your GP straight away and tell him/her that you want to stop taking the tablets NOW. If they won't listen to you then tell them you are going to change you Doctor, because you know that the medication is have horrendous effects on your physical and psycological well being. You can also ask for a second opinion. It took me four different doctors to finally listen to me and by then I was a stumbling zombie who felt like putting my head in the gas oven. However even though I told my GP this I was only taken off the drug when a vein popped in the back of my leg after I experienced severe pain in my calf. I am now on Losartin Potassium and I am more or less back to my old self. I even went away for a mini break which I could not have done whilst I was taking Amlodipine. I have tried to research into why it has been banned in other countries but so far I have not found much information. I feel that if enough people come forward and let their GPs know about the side effects then perhaps we could get some thing done about it and may be have it banned. What is the point of lowering your BP if you have no quality of life . I hope that the moderator will also send me your email address so that I can keep in touch and see how you are getting on. Please take care and go to your GP NOW !!!!!!! trust me you will feel a lot better once you stop them. Also demand that you have a blood test to see what your blood levels are, ie Sodium, Potassium, because when taking this medication regular blood tests are essential to make sure these are not being affected. Please let me know how you are getting on.

    _ 0 votes F Report Share < reply to Stacy

  • Stacy

    Hi Nigel I am so glad that you are feeling much better after coming off Amlodipine, it is a horrendous drug yet some people do tolerate it. I am more or less back to my old self however I do get side effects from the Losatin Potassium but once I get over the two hours of tiredness then, I can function. I just make sure that I take it in time so that it does not affect my day. I am back in work and hold down a very busy responsible job and I have also had a mini break, which I couldn't have even thought about if I was still taking A mlodipine. I do worry about other people suffering the effects of this drug especially Phoeb who sounds in a desperate state. I think what happens is that GPs become complacent and prescribe these drugs because they work, however they do not take into consideration the side effects which like a lot of treatments, can be worse than the illness. One Doctor told me off for reading the side effects and for researching the drug on the web site. My reply was that I was the one taking it, yet even though he listened to me, he did not take on board what I was saying and just sent me off with advise to give them a go. As I said it was only when a vein popped in the back of my leg did my GP sit up and listen then took me serious enough to stop it straight away. However the advice given to me when it was prescribed in the hospital was to go straight back to A&E if I had any leg swelling, also the chemist informed me that leg swelling is a common side effect. I really think that more research should be available and that if a patient presents at his/her GP with serious worries about the side effects, then they should be listened to . Please take care Anastasia

    _ 0 votes F Report Share < reply to Stacy

  • phoebebasing

    Hi everyone,thankyou for all your help and advice.,nearly back on this planet after refusing to take amlodopine! I have an unusual reaction to a lot of drugs,the worst being psychosis after a course of Tramadol for a frozen shoulder,this lead me to spend 4 weeks in a psychiatric hospital! Trust me if you have ever suffered from any mental health issues in the past then your GP is gonna have a field day if you go and tell him how strange the Amlodopine is making you feel,mine had me assessed 4 times by 3 different consultant psychiatrists who all said my symptoms were physical not mental,still GP was adament I was totally crazy and took everything I said literally,eg when Isaid I felt like I was on a different planet,he looked at me and said mmmm,when are you due to be seeing the psychiatrist again? To which I replied I dont actually THINK I am on another planet but I wish I was cos then I might get some help! Another time in the surgery I had to fill out a form and I couldnt even remember my own date of birth! When I mentioned it to the GP he helpfully suggested I might be suffering from anxiety.After reading on this forum,I decided not to take any more tablets and I was also told off for reading this forum with dr saying these sorts of sights can make you feel like you have got all sorts wrong,but the fact was I already had the symptoms everyone was describing.I am now a week without the tablets and doing ok but BP is back up,averaging about 190/125 but it is not as high as it was.I have told the dr Iam not prepared to go on anything else until Ive been down the natural route,especially as my bp had suddenly shot up in the first place as an adverse reaction to another drug. Off to Egypt next week so hopefully a good relaxing break will do the trick. many thanks again x

    _ 0 votes F Report Share < reply to phoebebasing

  • Stacy

    Hi Phoebe I am so glad to read that you are starting to feel more like your own self again. It took me about a week for the medication to get out of my system allowing me to think and act like a human being and not a zombie. I think that your GP was wrong to tell you off for reading this site, mind you I had the same. However they would not buy a product without reading the label first, or researching iin to it to see if was safe. It is too bad that we have to fight to be heard but at least you have had the response that you wanted also your BP should come down after your lovely holiday, and the fact that you are no longer anxious about your medication. I can not believe that they sent you to see the Psychiatric team due to the side effects of a drug. It states on the label in the packet that these conditions can be caused by the drug. I like you are very sensitive to medication and can only take one Paracetamol at a time if I have a headache because if I take two as prescribed then I will fall asllep. So GPs need to LISTEN to us when we tell them how we are feeling because we know our own bodies and how tablets affect us. You go and have a wonderful time and let us know how you are getting on because I bet there are a lot of people out there who can benifit from reading our experiences.

    Take care Anastasia xx

    smile

    _ 0 votes F Report Share < reply to Stacy

  • phoebebasing

    GP has given me a prescription for ramipril which I have told him I am not taking until i;ve tried the herbal remedies,but having since read about the drug it would appear it can be just as horrific as amlodopine,anyone else had ramipril?

    _ 0 votes F Report Share < reply to phoebebasing

  • Merlin

    Hi, Phoe. I have tried Ramipril, it was fine at 5mg for 3 months then suddenly I could hardly walk the pains in joints was bad so I stopped. However I have free from any B/P tablets for nearly 3 weeks and I am still within 140 ish / 80ish so I can see that taking the herbal remedy I do seems to work.

    But I do check each day as to the scale of my Blood pressure and am watching my weight plus getting excises twice a week.

    _ 0 votes F Report Share < reply to Merlin

Back to top Next
k

Report as inappropriate

Thanks for your help!

k

Already approved

You can't report this, it's aleady been approved by a moderator.

k

Share this

Discussion Forums' Terms & Conditions

The Patient.co.uk annual survey

Help us make Patient.co.uk better by answering our survey

No, thanksTake part!