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I am 57 and have just stopped taking HRT after 7 years a...

I am 57 and have just stopped taking HRT after 7 years and am plagued with hot flushes and pins and needles in the fingers. I can find plenty of guidance on the menopause and why to/ not to use HRT, but nothing offering information on what happens when you stop HRT! Help!

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  • Guest

    I am 52 had a hysterectomy at 36 and have been on HRT for 10 years and have been trying to get information about how to stop taking it. I have just been to my doctor and have to go back because she didnt know. what will happen will my skin sag,hair get thinner and will I become the depressed crying woman that I was? I just want to be a normal 52 year old woman and enjoy life.

    [i:7412af8da7]This message was automatically imported from the original Patient Experience[/i:7412af8da7]

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    • nancy50454 »Guest

      I hate to tell you this but I am 77 and was taken off HRT 3yrs ago and have suffered the menopausal symtoms all over again with horrendous hot flushes.`i had a hysterectomy at 46 and  have MS.Whilst on HRT I felt fantastic.`but since coming off ...rubbish. What the doc doesn't tell you is that you will go through the menopause when you stop HRT.I would love to go back on it and feell like me again 

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    • jean91171 »nancy50454

      Hi Nancy,

      I am 67 and have been taking HRT since 38 years of age. I also had a full hysterectomy 9 yrs ago. Up until recently, I was working full time in a fantastic job, but was made redundant. I have been job hunting since then and turning up for interviews soaking wet and flustered. As I live in Malta, the weather is hot in summer and I mistook this to be the reason. After reading these ladies comments, it suddenly hit me like a ton of bricks. Due to working full time (my choice) and not having much free time, I didnt bother to renew my HRT SCRIPT.I also felt it was time to stop taking it. Over time, I noticed pins and needles in my fingers,  hot flushes , weight gain, lack of confidence and the miseries. My  skin is dry and wrinkly. These symptoms appeared about 6 months after stopping HRT and I somehow missed all the signs.  My next move is visit to GP very soon.  My best wishes go out to you.

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  • Guest

    I am 55 and stopped taking HRT 2 years ago after having been on it for 5 years. Since coming off it I have had flushes and sweats constantly. I have loss of libido and feel I am inclined to be more irritable. I am now considering asking my GP about going back on it as I would like to be able to enjoy my fifties without these problems. Does anyone have any info on whether symptoms are less the older you are when you stop taking it or if you still have to go through the same things for the same length of time no matter what age you come off it.

    [i:4fc10bb5e4]This message was automatically imported from the original Patient Experience[/i:4fc10bb5e4]

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    • dings »Guest

      hi

      did you go back on hrt or stick to being off them. i too was on them for 5 years. i came off around 2 month ago and am finding the hot flushes unbearable. i get out of bed and my hair feels horrible and i cant sleep. i am considering going back on them. could you tell me how you are now and did you go back on them or have you improved.

      kind regards donna

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  • Guest

    I was interested in the comments.

    I am aged 50. I went on HRT at 48 when I had Menopausal symptoms. I came off it because my tablets Premique Cycle were stopped. I now have hot flushes, tiredness and tummy pains. I have read just about everything I can find, but haven't found the tummy pains in the symptoms. Does anyone have experience of this?

    MARCY

    [i:36689a1ebb]This message was automatically imported from the original Patient Experience[/i:36689a1ebb]

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  • chrissy16

    Hi

    I too was on HRT for 7 years. I am 59 years of age. I was OK on HRT and had no side effects, it was good. Then I moved house this year and the new doctor said I was too old and to come off of them. I was so scared. I did though and now have all the day sweats and night sweats back. It is horrendous. I too would like to know when do they stop or get better, but I suspect that if you are better you would not come to this site, so we will probably never know. I am going to try flash fighters though as I have tried everything else and nothing works.

    Chris

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  • Guest

    [quote=\&quot;M. N.\&quot;]I was interested in the comments.

    I am aged 50. I went on HRT at 48 when I had Menopausal symptoms. I came off it because my tablets Premique Cycle were stopped. I now have hot flushes, tiredness and tummy pains. I have read just about everything I can find, but haven't found the tummy pains in the symptoms. Does anyone have experience of this?

    MARCY

    Hello Marcy

    I am 51 &amp; decided to visit this site as I too am having tummy aches as well as terrible night sweats so in a sympathetic way, I am pleased to have come accross your comment. I have been having menopausal symptons for a couple of years but have yet to go to my GP about it. Perhaps the time has come?

    Sandy

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  • liverpool

    Hi I am new to the menapause at a young(arnt we all) 52.I am devestated at the lack of help even from female GPs our age.Its awful I have had my fitness taken away I walk everywhere its my hoby but I ache all over.Yes I have tummy ache all the time so you start to worry but they say \&quot;its your age\&quot; I am very tired and I lood awfu.I wanted to do it Naturally as i an scared of HRT and do not trust them to get it right.They just want you out of there office.xxxxxxxxxx

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    • helen93485 »liverpool

      You are so right. I have also found this - they don't want to know and cannot help you. I tried to come off HRT after 10 years and I have tried this before..... I feel I take a great dip and I feel very low and I cannot sleep and feel so awful. I came off Tibolone - had to go back on them and just feel now the tablets are not kicking in as I am get the sweats at night,

      tingling in fingers and numbness....GP advised maybe a stronger HRT which I felt upset my stomach. So back on Tibolone- it's just not working the way it used to...... My GP must be in her 50's and could not understand why I was not sleeping and achy joints...... I just want advice on how to manage this horrible episode of life I have to life with......I wish they would take this seriously and try to help me manage this..... They have no idea how it affects your quality of life...... X

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  • candy333

    hello to all the menopausal ladies out there. I was on h.r.t. for 12 years, kept trying life without it, total nightmare!! Went to see lady g.p. who deals with women's problems, and she said it was up to me, knowing the risks, whether to stop taking it or not.Then she said I could try patches, called estradot, tiny little things, waterproof too.You just change it twice a week. The lowest dose didn't help a lot, still had flushes, but not as severe, am about to up the dose. It's supposed to be much safer than tablets. Wish me luck :D

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    • jane98094 »candy333

      I have been on HRT Evorel Conti patches for 12 years.At the beginning I had some doubts and cut the dose by cutting patch by half.Since then stayed on patches and have been fit and well.Because it states on the leaflet your risks go up of stroke ,breast cancer,blood clots and heart disease although only slightly (egof women in their 60s 11 in a1000 women would have a stroke not on HRT or 15 in 1000 on HRT)I have tried to come off several times.The main problem when I stop is waking in the night and not being able to go back to sleep.Also seem to feel low and indecisive.However whenever I read Hooray for HRT by Teresa Gorman I think oh well I will take my chances and stay on for another good year with sleep and confidence !

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  • lalaguna

    [quote:7ae62d4100=\"candy333\"]hello to all the menopausal ladies out there. I was on h.r.t. for 12 years, kept trying life without it, total nightmare!! Went to see lady g.p. who deals with women's problems, and she said it was up to me, knowing the risks, whether to stop taking it or not.Then she said I could try patches, called estradot, tiny little things, waterproof too.You just change it twice a week. The lowest dose didn't help a lot, still had flushes, but not as severe, am about to up the dose. It's supposed to be much safer than tablets. Wish me luck :D[/quote:7ae62d4100] :oops:

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  • lalaguna

    Hi ladies. I was on h.r.t. for 17years, my doctor said i should stop taking them, as my eldest sister had a slight stroke.

    I am having hot flushes quite a lot, my doctor said to try BLACK COHOSH,

    What i would like to know is if anyone has tried these tablets please. :oops:

    _ 0 votes F Report Share < reply to lalaguna

  • Marianne

    Hi all, I am 54 years old and I came off HRT about 5 years ago after being on it for 10 years, yes I started the menapause very early. My doctor took me off HRT because of the breast cancer scare related to HRT. I felt dreadful after coming off it, hot flushes, night sweats, the night sweats were the worst. Now I am happy to say the night sweats are far and few between, one a month maybe, as for the hot flushes can't remember the last time I had one.

    Hang in there to all those ladies who have come off HRT there is a light at the end of the tunnel.

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    • Pattiecakes »Marianne

      I am 61. Stopped Hrt 1 yr ago. Until recently was just getting by with the sweats, now worse last two weeks so much I cannot sleep. Bed is soaked, I am soaked. I am sure I would lose my job if I were working as I cannot attend church or any daily activities anymore. How long before it starts to go away? I can't go on like this as were raising our twin 16 month old Grandchildren.......my Gyn stopped me cause I was having to much break through bleeding. Now what?? Can't seem to get answers from anyone?

      thanks

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    • cmac »Pattiecakes

      I am 57 and have stopped HRT a few times - though not for as long as you. Each time, the lack of hormones drove me bonkers and I simply could not get out of bed from the depression - plus I lost my sex drive and any energy!  So I chose to go back on, but with lowest dose estradiol patch (twice weekly) plus quarterly progesterone. I did have breakthrough bleeding with original Premarin tabs, and that was first time I tried to stop all HRT and used various recommended natural alternatives.  Nothing helped. I was miserable and yet terrified to try HRT again. I remembered my mother going through all the worst post-menopausal symptoms and they did not have HRT and frankly, she got through it on anti-depressants and alcohol! Not for me. I worked with my doctor, discussed less harmful but still serious HRT options, and have check-ups every 6 months. Tell your gyn that you need options NOW, including starting with specific natural remedies, so that you can start getting decent sleep, get on with raising your grandchildren, and living a happy daily life again.  

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    • julie76726 »cmac

      Hello cmac, I am taking estraderm patches they are great apart from one side effect, because I suffered from endomitriosis they do seem to have activated that pain again . so every few weeks i get like an ovary pain in my side that lasts for about five days. However the benifits from the patches such as increased libido, no more night sweats, a positive outlook and increased happiness are all worth it. I call it the "happy patch".

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  • linda407

    I have been on Femseven hrt for the past 9 years now my GP insists that I come off it. I have tried myself on several ocassions but have terrible side effect, hot sweats, bad dreams and not sleeping feeling unsteady and very stressed.

    Does anyone know if your GP can force you to come off HRT if you wish to stay on it .

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  • sue73

    I guess your GP will simply not issue a prescription for you if he/she feels strongly about it, and your only option then is to try another GP. I do sympathise. I was in the same position but decided to trust my GP's decision and, like you, suffered terribly. I am now 67 and still get the odd hot flush, and other symptoms such as creepy-crawly skin that drives me mad, but what can you do? Menopause is just awful for some women.

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  • Abracadeborah

    I have been on HRT for 12 years. I went into an early menopause at 33 years of age after ovarian failure. I have tried many times to come off of my medication. but after a week I am getting over bearing hot flushes that last a minute every few minutes. It is driving me crazy I just cant take it anymore. Any remedies advice welcomed PLEASE :-(

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  • cindy24

    Hi I'm 53 and have been going through the menopause since my mid 40s. I started with chronic hot flushes day and night a few years later, when I was 49 but did not want to go down the HRT route as I understood all the symptons return once you come off it (as confirmed by those earlier postings), plus the added health risks. I have tried just about every natural remedy on the market and have found (for me anyway) that ground linseed (flaxseed to our American friends) helps enormously with the flushes, providing you take it regularly. I sprinkle a table spoon on my breakfast cereal and another either in or on my dinner, however dosage can be increased or decreased until you find what suits you. It has the added benefit of fibre and omega. I also take sunflower/star flower oil capsules. I don't know if I'm allowed to advertise (sorry if I'm not!) but I purchase my linseed from xxx who give lots of advice for us women of a certain age.

    Emis Moderator comment: I have removed the link but if anyone does want the details please use the message service

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  • christine75424

    I'm 52 and have been on HRT for just over 5 years. I am going to see my doctor about coming off as I'm aware of the health risks, but I must admit I'm nervous. I've felt healthy and happy taking HRT, no more hot flushes or night sweats. I've also had a healthy libido and I really don't want to lose it. Do others think there is a risk it will go? I'm in a new, positive stage of my life and worry that coming off HRT will derail me.

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  • cmac

    I am 57 and have gone off HRT three times and switched type of HRT twice (from oral to patch and bioidentical). Bottom line: when I stop HRT, I immediately sink into deep depression and lose interest in and physical enjoyment of sex. I also suffer mild flushes/sweats, hair loss, skin dryness when off HRT - but those are bearable. It is the crushing depression and libido loss that send me back to HRT. I am on the lowest dosage for the patch, and quarterly I take progesterone for a week (because I still have uterus). Every 6 months, I reexamine risks and options with my doctor, but for me - quality of life is so much better on HRT that I am willing to continue. My husband wants me off it, and I will continue to try periods of time without to see if I still get suicidal, but for now, HRT is very much contributing to my desire for sex and just getting out of bed every day!

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    • jane98094 »cmac

      Hi I am 62 and have been on Evoril Conti patches for 12 years . Tried to come off last year and used nutrition fx menopause which helped ... I think but still had trouble being hot in the night and not sleeping and feeling a bit low so went back to patches and decided to wait till I retired .I have been on half a patch for a number of years and quite happy and no problems just advised by my doctor that due to length of time should try to wean myself off.Started to leave the half patch on for slightly longer but have started to feel tired and low mood .

      I think the problem is nobody really knows and I don't know either if the benefits outweigh the risks?

      i have a friend who has had breast cancer and had one breast removed but shie never took HRT.!It is a difficult choice and quality of life is important.

      It works for me but perhaps so would not taking it in time?Nice to know I'm not the only one with this problem!.

      The evidence is so inconclusive !What to believe? Some people swear by it and my friends mum took it into her 80s!

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    • cmac »jane98094

      I know! And honestly, what I read here is not making me feel any more determined to stop. Not a lot of "came through the other side and finally am feeling fine without HRT." Just resignation and acknowledgment that we must go on with some symptoms, helped a bit by natural remedies.  I think we do need to push medical field to test and assist women more through menopause. We are living far longer than our ancestors and of course want to still feel productive and joyful. Look at the money and research behind viagra and cialis - it was so that men, faced with aging symptoms, could still enjoy a healthy sex life. Right now I feel that the medical field is only telling us, "Oh, you must stop HRT but we have no idea what else to tell you to do for those pesky menopause/post-menopause symptoms; check back in a few!"

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    • jane98094 »cmac

      This is a quote from " Hooray for HRT " All life is a gamble and if you like to have a flutter then the odds of dying of a heart attack are2:1, osteoporosis is 10:1 and breast cancer a very long shot at 40:1.If you regularly use HRT you  would be wasting your money on the bet because the chances are the bookie will die before you "

      I think as long as you eat sensibly and take exercise and have check ups then taking HRT is worth the gamble for the quality of life it brings unless your high risk of any of the above or it doesn't agree with you.

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    • ClaudiaMc »cmac

      What dose of progesterone are you on?  I'm 62 and my doctor wants me to cut my patches in half to try and go off of them but I wasn't sure what to do about the progesterone pills I take.  I am very nervous about going off HRT due to depression.  I already am on an anti depressant. 

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    • ClaudiaMc »jane98094

      Is your patch a combination of estrogen and progesterone?  Or do you take a pill for progesterone?  I am 62 and take a progesterone pill along with wearing my patch.   I am curious about reducing the progesterone dosage as I try and cut my patch in half to reduce my HRT.  I am also of the mind to continue HRT if I can't keep my quality of life without it.

      _ 0 votes F Report Share < reply to ClaudiaMc

    • RVF »jane98094

      Hi Jane

      I'm 66 and have used Evoril patches for 14 years with 2 short breaks.

      I use it to support my osteoporosis as i can't stomach oral medications for that.   My specialist is happy for me to stay on it as I don't have history of cancer in the family (that I know of) - this is crucial in your decision on how and what to use.     My scan showed deterioration while i was on the break so I am trying to perervere though lately i do seem to be having night sweats again!

      All the best.

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    • jane98094 »ClaudiaMc

      Hi Claudia

      i am on EvorelConti combined patch 3.2 estradiol 11.2 norethisterone .i have been on half a patch for 12 years and I am 62 .I originally went on it as I was having lots of UTI and read HRT could help.What I noticed that I felt like myself again and hot flushes etc went away.

      i have had 2 goes at coming off but each time I've had problems with low mood and not sleeping and loss of sexual desire but that might also be age related ?

      i am really not sure if one is better on HRT or not?Unlike smoking one really doesn't know how good or bad it is for you?I am just trimming a tiny bit of the patch because I would like to be drug free but if one has to take loads of supplements or other drugs maybe better to stick to HRT which after 12 years I think my body thinks is normal!

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  • julie18028

    Hi I am 57 and have been using a patch for the last 14 years following surgically induced menopause .I have felt great but was encouraged by my G.P a year ago to discontinue I have managed this by cutting the patch first in half and now down to a quarter .unfortunately each time I reduce I experience dreadful hot flushes and impaired memory but it does get better.Its a slow process, took a year to go from half a patch to a quarter but I am getting there

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    • jsjue »julie18028

      Thank you ladies for sharing.  I am 59 and have been on HRT pills at least 10 years and I would like to stop.  I am scared about the hot flashes, loss of libido, night sweats........eeekkkk.  But you gals give me hope.  I would like to hear some more about maybe switching to the patch and cutting the patch down.  I workout 2 to 4 times a week with cardio and weights and I feel great but I want to stop the pills.  So please talk to me. 

       

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    • loretta63638 »jsjue

      Hello Julie, I am 58 and have also been on HRT for about the same amount of time.  I have started to wean off 3 months ago, I skip taking one on Sunday initially and now 3 months later just stopped taking another one on Saturday, I will wait another 3 months to see how I am doing, and then skip Wednesday..... I am following the directions of Dr. Love on the internet.  How are you making out?  Please keep in touch.

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    • loretta63638 »jsjue

      Hello Jsjue, I am 58 and have also been on HRT for about the same amount of time.  I have started to wean off 3 months ago, I skip taking one on Sunday initially and now 3 months later just stopped taking another one on Saturday, I will wait another 3 months to see how I am doing, and then skip Wednesday..... I am following the directions of Dr. Love on the internet.  How are you making out?  Please keep in touch.

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