hospital admission,treated dirty,

1. margaretann 17 August 2010 at 01:39AM
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   Hi everyone hope you are all ok what i want to know how do you cope with hidradenitis suppurativa when you get addmited to hospital for some other illness and be embarrased with the mess your body is in.well it happened to me i was addmitted for surgery to my foot and when the nurses were going through the addmission procedure they both screwed up there faces thinking i didnt see them and they were treating me like i was some lower class person that never washed, i felt so dirty and was near to tears with there comments i just wanted to go home and hide myself away i was so embarassed, i then told the nurses that there comments was unprofessianal i dont think i want to go in to hospital ever again i just want to lock myself away. The nurses on this ward had never seen this before.is this horrible condition so rare that this has to happen? i am now out of hospital and like i said it was the worse experience of my life, has anyone else been treated bad like this ?it might make me feel a bitty better if i knew that my experience was not unheard off and someone else knows what its like to be treated like this :oops: :? :cry:

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2. Guest 20 August 2010 at 12:18PM

   Hi,

   I have had a couple occassions like this so please don't think your alone! its always difficult living with this disease but we can't let ourselves be brought down by others. I deal with this two ways, either take a deep breath realise there are others much worse off somewhere and ignore their ignorance... or address it head on, I have taken to explaining the condition in advance of any such medical encounter, I even informed my dentist the other day! It is remarkable how much the condition can affect your heath in general and every part of your life so sometimes its just better to swallow any pride and tell all!

   I have had HS for 12/13 years and tries most things to help. I probably only have stage 2 so not as badly as some but am a great believer in holding your head high and not letting it get the better of me

   Hope this helps.x

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3. Guest 12 October 2010 at 14:42PM

   Jve just checked myself out of hospital after surgery for 3 major abcess's, I was in so much pain I couldnt sit stand or lay down, I stood crying waiting to be seen for 3 hours then rejected by all departments, finnally admitted asked if I was injecting, injecting what I said, drugs they said we have to ask, omg Im just an ordinary married woman whose kept this a secet for so long but this time it was reslly bsd and now I was made to feel like scum, ive never been treated like this before. After surgery 12 hours later, I was put in a corner and I had to ask for pain relief no one asked how I was or took my obs, for three days I lay there I had to ask for my dressing to be changed and they tried to yank it out I was screaming so they gave pain relief to do it, I wasnt even offered help to wash, so I checked out and then they said what about pain relief.......I just laughed......This is England:cry:

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4. Guest 15 December 2010 at 18:14PM

   hi. I find the majority of NHS workers are ignorant and uneducated to this condition. While on the ward waiting for my first operation I overheard the nurses saying \" whats it called?, what is that ? eergh.\" i felt like telling them to go google HS and also the words unprofessional and discretion. the thick uneducated muppets what they are. Don't let it get you down. It really is their own fault that they are a bit dense! :D

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