Just been told that I have to be put on Rituximab & I'm a little concerned about the side effects & I thought if I spoke to some people who have been on it already it might help me decide whether to go on it or not.
Hi - I am in the same position. I am about to start Rituximab. Did you get any replies from other areas and if you did start in 2010 can you let me know how it went.
I'm not going to be much in the way of help, I decided not to use Rituximab, I was worried about the side effects, so I decided against it.
No sorry, I didn't get any replies at all, yours is the first. Hopefully someone with some useful information will contact you. Good luck Richard, I hope you keep well
Hi Marion, just found this site so by now you are probably sorted but thought I would mention that I was tried on rituximab but it doesn't seem to have made any difference to me. Which probably accounts for why I had no side effects.
That being said a lady I sat next to when I was having my last round of infusions found it very good and results for her were almost immediate, plus she said she had no side effects.
Hope this helps someone
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